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Dear Ms. Hursh:

Thank you for your message to the National Institute of Neurological Disorders and Stroke (NINDS).  We regret the delay in responding.

We appreciate your suggestions regarding the possible cause of chronic inflammatory demyelinating polyneuropathy (CIDP).  You suggested that it may be the result of exposure to 2-butoxyethanol.  If you have not already done so, you may wish to visit the web site of the Centers for Disease Control and Prevention's Agency for Toxic Substances and Disease Registry (ATSDR).  You can access the home page of the ATSDR and their information on 2-butoxyethanol, respectively, at the following sites: http://www.atsdr.cdc.gov/ and http://www.atsdr.cdc.gov/tfacts118.html.

To learn more, you may wish to search PubMed, which provides free access to a bibliographic database of published biomedical literature from the National Library of Medicine (NLM).  You can access PubMed at http://www.pubmed.gov  The searches "polyradiculoneuropathy, chronic inflammatory demyelinating  AND n-butoxyethanol" and "peripheral nervous system diseases AND n-butoxyethanol" did not identify any articles.  However, you may wish to try the search strategy "polyradiculoneuropathy, chronic inflammatory demyelinating/etiology" to find articles on the possible causes of CIDP.  To learn more about possible adverse effects of exposure to 2-butoxyethanol, you can try this strategy "n-butoxyethanol AND poisoning."  To obtain copies of any articles identified by your search, you may need the assistance of a librarian at the nearest university or medical library.  Alternatively, the NLM offers a service called Loansome Doc that allows PubMed users to order a copy of any article they locate in the database directly from the Internet. 

In case it would be helpful, we are including the link to our online information on CIDP, available at the following web site:  http://www.ninds.nih.gov/disorders/cidp/cidp.htm.  General information about peripheral neuropathy (disorders of the peripheral nerves) can be found at http://www.ninds.nih.gov/disorders/peripheralneuropathy/peripheralneuropathy.htm and http://www.ninds.nih.gov/disorders/peripheralneuropathy/detail_peripheralneuropathy.htm 

In addition, you may wish to visit the MedlinePlus web site offered by the NLM.  The site is designed to assist people in identifying resources that will help them with their health concerns or questions.  Materials on peripheral nerve disorders are available at the following site:  http://www.nlm.nih.gov/medlineplus/peripheralnervedisorders.html
 
Because of your concerns about 2-butoxyethanol, you can learn which household products contain the substance by visiting NLM's Household Products Database.  Information on the 2-butoxyethanol is available at http://householdproducts.nlm.nih.gov/cgi-bin/household/brands?tbl=chem&id=45

Finally, the NINDS online information on CIDP lists one or more health agencies that are sources of additional materials or referrals.  You can access this list at http://www.ninds.nih.gov/disorders/cidp/cidp.htm#Organizations

We hope this information is helpful.

Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke

"BRAININFO, Remedy (NIH/NINDS)" Braininfo1@mail.nih.gov 

12/26/07  Request for Information, Tracking ID: IR017106

 

My reply:

USA doesn't realize FULL harm of EGBE  

Thank you re:  2-butoxyethanol response
 
As you see ... USA doesn't think this chemical is all that harmful - Not true - IT IS HARMFUL
 
The UK has the best MSDS list that shows the cancers *  to suspect, probably others if a doctor were to ask
 
 
 
My views, Immune helps suggested

Tracking Number: IR018640. Your email received

12/27/07

What happened to the Vietnam Vets? *    Gulf War Illness & CFIDS etc

What happened to the Exxon Valdez Oil spill cleanup workers?  *

Happy New Year! and good health to you!  -

High WBCs?

Maybe not an infection ... but a clue to AIHA ... or NHL starting up

Some clues as to why?

 

Thank you for your e-mail to the National Institute of Neurological Disorders and Stroke (NINDS).  Your request has been forwarded to appropriate staff.

Because of the number of inquiries we receive, we will respond only if we have information that we believe pertains to your request.  In that case, it may be some time before we can respond. You may be able to find some of the information you are looking for by browsing our website at http:/www.ninds.nih.gov or visiting these information resources:

  * Clinical trials information:
    http://clinicaltrials.gov

  * Physician directories, drug information, and other resources:
    http://www.nlm.nih.gov/medlineplus/

  * Searchable database of biomedical research articles:
    http://www.ncbi.nlm.nih.gov/pubmed/

  * Organizations with an interest in neurological disorders:
    http://www.ninds.nih.gov/find_people/organizations_index.htm

  * Guide for people with a newly diagnosed health condition:
    http://www.ahrq.gov/consumer/diaginfo.htm

  * Health statistics:
    http://www.cdc.gov/nchs/

Please note that NINDS is primarily a research funding agency and as such can not provide referrals to specific doctors or researchers or provide advice on specific health problems.  Medical advice on diagnosis, treatment, or care of an individual patient should be obtained through consultation with a doctor or other health care provider.

If you need assistance urgently, call the NINDS Brain Resources and Information Network at 800-352-9424.

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