This is a public view, private membership, international site. All documentation shown in the panel to the left of this page and all Message Boards are open to view on the Internet.
The site is on a server provided by Sympatico/MSN at no charge to us. It is subject to the Microsoft Online Privacy Statement at http://privacy.microsoft.com/en-us/default.aspx
This is a peer to peer group for patients and family or friends of patients, who focus on day to day management of the disease and treatments. There are links posted to relevant on-line information, by qualified people and from reputable sources, but these cannot substitute for professional, medical advice.
There is a membership application process, designed to review new applications in order to keep the site free of inappropriate postings. At the time of application, a member's email address will be forwarded to Managers. The email address will be kept on file but will not be disclosed to anyone else. Applicants will be asked to provide a reason for the application. This information will not be shared with anyone except the Managers.
Each member of this site has a profile page, viewable by registered members of the site. Members may choose which information to show on that page. There is also a documents folder accessible by members only.
This site sets a cookie for an automatic sign-in if that option is chosen by the member. You may reset sign-in options by signing out and in again at the head of any page.
There is an advertisement placed at the head of each page by the server provider, MSN Groups, but the site itself, http://groups.msn.com/Chordoma does not accept advertising.
There are presently three volunteer Managers, who work together to keep things running smoothly. One is in Canada and two are in the United States.
If there are any questions about this page, please contact the Managers.
