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Subject
Messages
Started By
Last Reply
Help Me understand
3
backinpa2008
7/25/2008 3:59 AM
Never Give Up!
11
psalm62
7/25/2008 3:44 AM
New member - Sydney Australia
4
budgie72au
7/17/2008 11:20 PM
Pituitary Function
1
renpooh0
7/16/2008 10:20 PM
Good MRI
9
greyhoundlady6
7/16/2008 2:45 AM
SURVEY
4
AloneDeni
7/16/2008 2:44 AM
UPMC/Dr Kassam
5
backinpa2008
7/15/2008 3:41 AM
DO THE SURVEY!
2
Mountaingirl214
7/12/2008 4:34 PM
CT Scans/ Chordomas and Protocols
6
ajrmab
7/11/2008 5:51 PM
Temporary but serious sweating after surgery
7
DE-Gil
7/9/2008 2:01 PM
NYT article re Avastin
1
shoozgirl
7/8/2008 5:55 AM
Discussing people by name on this board
1
Ann
7/7/2008 8:35 PM
Problems with that link to the QoL survey??
3
Chordoma_managers
7/5/2008 11:16 PM
Research/Trials
1
shoozgirl
7/5/2008 5:29 PM
Interstitial Cystitis (IC)
2
BrighterBlessing
7/3/2008 6:50 PM
Reposted - clinical trial - chemo
5
Chordoma_managers
6/28/2008 12:55 AM
Members Stories
7
JennDoo1
6/25/2008 11:13 PM
Member success
9
Chordoma_managers
6/25/2008 3:35 AM
My thoughts regarding the Focus Group and some ideas moving forward.
4
1
calbainer7
6/24/2008 10:53 PM
Proton Beam Therapy in Michigan
4
renpooh0
6/23/2008 4:32 PM
Quality of Life Research ++
10
1
Chordoma_managers
6/23/2008 4:34 AM
Sixth Anniversary
7
1
BrighterBlessing
6/22/2008 8:50 PM
Medical records
6
Ann
6/20/2008 1:13 PM
Quality of Life Research Part 2 starts now
3
Chordoma_managers
6/19/2008 11:14 PM
9th month of Sutent trial
4
PhysicistRichG1
6/19/2008 11:54 AM
My Mothers Story and Soon to be Tragic Ending
6
B94Six9
6/17/2008 1:07 AM
mew member -pa (dup from general)
5
diggerwalt
6/14/2008 6:00 PM
Contacting the Managers and Joining this Group
1
Ann
6/13/2008 12:53 AM
Good News
4
GoTigers12
6/13/2008 12:44 AM
PROTON CENTER IN MICHIGAN
5
renpooh0
6/9/2008 3:07 AM
June Newsletter - Please read
2
1
Chordoma_managers
6/7/2008 5:05 AM
Chromosome 7
1
Jaclyn1025
6/2/2008 4:05 AM
Official Chordoma Information - Searching?
16
BrighterBlessing
5/29/2008 5:20 PM
New Menber - PA
11
1
Jaclyn1025
5/29/2008 3:31 PM
Research study - focus groups - Thank you
1
Chordoma_managers
5/29/2008 1:52 PM
proton therapy in PSI Switzerland
2
picover39
5/27/2008 2:04 AM
Quality of Life - Pre Chordoma
3
BrighterBlessing
5/26/2008 10:14 PM
Decent MRI this week...
2
calbainer7
5/26/2008 10:46 AM
Any other insomnia sufferers
10
rblayton
5/25/2008 3:18 AM
Tell doctors about your quality of life after - or during - chordoma!
1
Chordoma_managers
5/24/2008 3:41 PM
Stuff I left out at the focus group
1
dansfae2
5/22/2008 12:44 PM
Any other insomnia sufferers?
3
calbainer7
5/22/2008 12:25 PM
Join a focus Group or send us your opinions!
4
Chordoma_managers
5/19/2008 7:45 PM
West Coast" Join a focus group timed for you
1
Chordoma_managers
5/19/2008 6:01 PM
New Research - Let's Do It!!
5
Chordoma_managers
5/17/2008 3:25 PM
Looking for Recommendations
3
calbainer7
5/15/2008 4:51 AM
Anemia
2
whozzit
5/15/2008 4:28 AM
Looking for Recommendtions
3
Dee24736
5/14/2008 12:34 AM
Proton Therapy Equipment
2
renpooh0
5/12/2008 10:34 PM
prayers and persistance pay off
2
gpfgirl
5/12/2008 2:51 PM
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