Now you are talking! Hope people will post here.I have the usual cs patern and reduced pulse.T-shirt change examples: Woodchoping andcross country skiing: 30 min.Ordinary garden work, moving lawn, carpenter work: 1 hour.(Somewhat depending on air humidity).If I may add; I have opened a Swedish forum, strictly anti ETS: http://communities.msn.se/PostSympatektomiForumEnglish writers whom have had ETS in Sweden are welcome.
My name is Morgan Carlson and I am chairman of an support group, called FFSO, in Sweden for ETS patients.
Side effects may arise in some patients after many years. In FFSO we have a girl who had ETS surgery when she was 15 years old, and she was happy for 9 years before the side-effects started. There are many other examples of this. Three, four, or 5 years after ETS surgery to suffer side-effects is nothing unique. There may be people who are happy today, but will be unhappy tomorrow. The ETS doctors have always ignored the side effects. Now they say severe compensatory sweating was not known of before 1997. However, I had ETS in 1992 and have lived with these side effects for 10 years.
In 1988 I was in a car accident and had severe burns. My neck, back and leg were destroyed and I started to sweat under my arms. I was then diagnosed with Post Traumatise Stress Disorder (PTSD). I then happened to read about this "fantastic" ETS operation at Borås hospital. I decided to go ahead with it, seeing it was meant to cure an awful problem. The night before the operation I told my surgeon about the accident and he said, "1 in 1000 could maybe get mild, but not noticeably, sweat on the body and it was nothing to worry about". That was all the information I had been given before my operation. One week after the operation the side effects started, severe CS and pain in my whole body. I phoned Dr Drott, and he sad he has never heard of this, and it has not happened to any one else. He said the problem must be with just me. I didn’t get any help. In 1994 I tried to take my life 2 times. Then I saw a TV program here in Sweden. Norra Magasinet was talking about side effects from ETS, and about other people who were in the same situation as me. It was then that I contacted Jerry Rudenvall (he is now vice-chairman in FFSO), and he said that he wanted to start an organisation for people who had side effects from ETS. In 1999 we started FFSO and today we have contakt with over 300 peopel here in Sweden, who's lives have been destroyed by ETS. Many of the members have had the same answers from their surgeons...that they have never heard of these side effects. The statistics in reports are false, saying nearly 98% are satisfied, and that there is no evidence of physical delay in any way. Since 1999 I have got over 3000 e-mails and a lot of phone calls from all over the world from people who also have side-effects from ETS. There are so many e-mails that I haven't go time to answer.
There are now some smaller hospitals in Sweden who have now stopped performing ETS sugery, because of the side-effects. We have also since caused new rules to be made by the Swedish Health Authority. ETS in Sweden can no longer be performed on anyone under 20 years of age, and should only be performed as a last solution when everything else has been tried.
Two to Three years ago I got e-mails from people asking if I could speak to them about side-effects from ETS. They instead listened to the ETS doctors, and I have recently got e-mails from the same people who wish they had listened to me. It is up to you if you prefer to listen to the ETS doctors or to a patient who has experienced the surgery. Anyway I lessened to my surgeon and it has ruined 10 years of my life physically, psychically, socially and economically.
Morgan Carlsson chairman of FFSOSpadegatan 9432 37 VarbergSwedenFax/Tel: +46 340 8010http://home.swipnet.se/sympatiska