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Excessive Sweat-HHContains "mature" content, but not necessarily adult.ExcessiveSweatHH@groups.msn.com 
  
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Negative ETS Experiences
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Nickname john-n
Original Problem Palmar HH
Results Dry hands,. Work/sport handicaping side effects
Date Done/Who Performed 1995 0225, Dr Drott
Comments

Now you are talking! Hope people will post here.
I have the usual cs patern and reduced pulse.
T-shirt change examples:
Woodchoping andcross country skiing: 30 min.
Ordinary garden work, moving lawn, carpenter work: 1 hour.
(Somewhat depending on air humidity).
If I may add; I have opened a Swedish forum, strictly anti ETS:
http://communities.msn.se/PostSympatektomiForum
English writers whom have had ETS in Sweden are welcome.

 


 

E-mail ingvartpalul@hotmail.com
Home Page
Updated 2/6/2002
 
Nickname SSA
Original Problem Palmar, and to a lesser extent, axillary HH
Results ETS Has Destroyed My Life
Date Done/Who Performed George Haasler, Assistant Professor - Cardiothoracic Surgery, Faculty Physicians & Surgeons, Medical College of Wisconsin at Froedtert Hospital, Milwaukee, WI - 8/19/94
Comments
For details on my ETS horror story, as well as aggregated documentation of nearly 80 different, unique cases of ETSvictims reporting their horror stories, (which include deception, omission, manipilation, and outright lies by the ETS industry), refer to the following...
 
 
Here is a support group who has filed medical malpractice litigation against the Swedish ETS industry..
 
 
Here are some other useful websites, which reveal the truth about ETS...
 
 
 
Further research shows that ETS corrupts peripheral blood flow in the human body, leading to abnormal, artificial coldness in the denerved regions, caused by contralateral vasoconstriction...
 
 
Correspondingly, there is compensatory vasodilatation in the remaining areas of sympathetic activity, leading to abnormal heating and thermoregulatory disturbances.  The compensatory vasodilatation was diagnosed in my case by a leading US neurologist specializing in autonomic disorders, now practicing at the Mayo Clinic, MN.
 
In lay terms, this means that ETS destroys the body's ability to send blood to the tiny capillaries of the outer skin in the widespread areas of denervation.  This is how the body's thermostat, the sympathetic nerves, normally controls and regulates body temperatures internally.
 
Correspondingly, there is compensatory blood flow to tiny capillaries of the outer skin in the widespread areas of remaining innervation; i.e., the lower torso, legs, buttox, and groin.
 
This is why these areas produce more heat post-ETS, and why they also feel far warmer in the remaining innervated areas than the denerved areas post-ETS.
 
Here is a link from Dr. Timo Telaranta's website that describes the clinical effects of ETS damage to the sympathetic nerve chain with respect to compensatory increase in sympathetic activity of the remaining nerve structure, and a corresponding post-ganglionic sudomotor denervation in the upper extremities...
 
     "Performing ETS by electrocautery on T2 and possibly also on T3 may result in several unwanted changes in the physiology: The normal sweating pattern is changed so that the sweating of the head, upper torso and upper extremities, which altogether FORM ABOUT 40 % OF THE BODY SURFACE AREA, is redirected to the lower body."
 
 
Recently, Drionic updated their website with some very important changes. Under the section entitled "Surgical Problems" Drionic illustrates and reveals the truth about ETS with respect to upper-torso anhidrosis....
 
 
It is inexcusable and indefensible that the ETS Industry does not reveal this vital information to patients prior to surgery. If they did, there would be far fewer people whose lives has been destroyed when they made ill-conceived decisions to proceed with a surgery that was far more dangerous than they ever imagined.
E-mail
Home Page
Updated 5/9/2002
 
Nickname Morgan Carlsson
Original Problem Armpitsweating
Results a lot of side effects
Date Done/Who Performed 1992 by Christer Drott
Comments

My name is Morgan Carlson and I am chairman of an support group, called FFSO, in Sweden for ETS patients.

Side effects may arise in some patients after many years. In FFSO we have a girl who had ETS surgery when she was 15 years old, and she was happy for 9 years before the side-effects started. There are many other examples of this. Three, four, or 5 years after ETS surgery to suffer side-effects is nothing unique. There may be people who are happy today, but will be unhappy tomorrow. The ETS doctors have always ignored the side effects. Now they say severe compensatory sweating was not known of before 1997. However, I had ETS in 1992 and have lived with these side effects for 10 years.

In 1988 I was in a car accident and had severe burns. My neck, back and leg were destroyed and I started to sweat under my arms. I was then diagnosed with Post Traumatise Stress Disorder (PTSD). I then happened to read about this "fantastic" ETS operation at Borås hospital. I decided to go ahead with it, seeing it was meant to cure an awful problem. The night before the operation I told my surgeon about the accident and he said, "1 in 1000 could maybe get mild, but not noticeably, sweat on the body and it was nothing to worry about". That was all the information I had been given before my operation. One week after the operation the side effects started, severe CS and pain in my whole body. I phoned Dr Drott, and he sad he has never heard of this, and it has not happened to any one else. He said the problem must be with just me. I didn’t get any help. In 1994 I tried to take my life 2 times. Then I saw a TV program here in Sweden. Norra Magasinet was talking about side effects from ETS, and about other people who were in the same situation as me. It was then that I contacted Jerry Rudenvall (he is now vice-chairman in FFSO), and he said that he wanted to start an organisation for people who had side effects from ETS. In 1999 we started FFSO and today we have contakt with over 300 peopel here in Sweden, who's lives have been destroyed by ETS. Many of the members have had the same answers from their surgeons...that they have never heard of these side effects. The statistics in reports are false, saying nearly 98% are satisfied, and that there is no evidence of physical delay in any way. Since 1999 I have got over 3000 e-mails and a lot of phone calls from all over the world from people who also have side-effects from ETS. There are so many e-mails that I haven't go time to answer.

There are now some smaller hospitals in Sweden who have now stopped performing ETS sugery, because of the side-effects. We have also since caused new rules to be made by the Swedish Health Authority. ETS in Sweden can no longer be performed on anyone under 20 years of age, and should only be performed as a last solution when everything else has been tried.

Two to Three years ago I got e-mails from people asking if I could speak to them about side-effects from ETS. They instead listened to the ETS doctors, and I have recently got e-mails from the same people who wish they had listened to me. It is up to you if you prefer to listen to the ETS doctors or to a patient who has experienced the surgery. Anyway I lessened to my surgeon and it has ruined 10 years of my life physically, psychically, socially and economically.

Morgan Carlsson chairman of FFSO
Spadegatan 9
432 37 Varberg
Sweden
Fax/Tel: +46 340 8010
http://home.swipnet.se/sympatiska

E-mail moffso@swipnet.se
Home Page http://home.swipnet.se/sympatiska
Updated 5/19/2002
 
Nickname tmore
Original Problem hh hands, feet
Results hands in good shape,cs all over heat/anx. times
Date Done/Who Performed willlenberg, wooster,MA 1989
Comments
great cure for hands but side effects of cs are very tough to deal with.  cs brought about by warm temperature,sun and anxious moments.  hoping some day for "magic pill" from genome project or possibly reversal if shown fairly conclusively to work. that's all for now except to urge anyone considering ets to first try drysol for underarm, botox for hands and feet.  Finally very interested in recent post on phentolamine mesilate injection.  tmore.
E-mail
Home Page
Updated 6/28/2002
 
Nickname michael alexander
Original Problem SURGERY CAN HAVE BAD EFFECTS
Results STAY AWAY FROM STANFORD, CA
Date Done/Who Performed DR. JAMES B.D. MARK
Comments
Hi,

I keep posting here just so people will know that surgeries can have really awful side-effects and run the possibility of creating a mess far worse than what one had previously

I had surgeries at Stanford, CA for hyperhidrosis. At the time, I went to Dr. James B. D. Mark, Dr. Mark Gratten, Dr. Peter Johannet. They felt my hands, said they were cold, clammy and that they could do a sympathectomy to relieve this, that I would have "small" scar and then possibly "sweat a little more under the arms." They also indicated that "everyone was happy." I decided to proceed.

The absolutely worst thing that we could have possibly done ever for this!!!!!!!!!

All the surgeries did was make the most obscene, nightmarish mess imaginable. I have and have had since then (14 yrs now), complete, total body sweats, heat/humidity intolerance, hot flahses, a band of heat that runs across my chest and back, sores on my hands, face, shoulders, head that never heal because there is not a drop of moisutre left. Sores in the groin area, on the chest and elsewhere because it is now so wet and never lets up. My clothes are just soaked from the time I get up to the time I go to bed. My face feels like a piece of plastic, not skin anylonger as it sooooo dry. I look super pale and never have any kind of healthy color. If I go outside in the sun, my face just sizzles. My skin has aged incredibly and I look way older than I am.

In other words, I am not a person anylonger just a hot-flash sweat machine. Really very difficult for me even to function. Really miserable and really gross.

At the time of surgery, no one, and I MEAN no one ever examined my face or said anything about the surgeries affecting one's entire upper body. I would have never have done it as I really didn't have a problem there, and I would have been concerned about how such a change would feel. After the surgeries, I went back to them and told them what was going on. They got MAD! that I would ever dare to indicate that I had a worse problem now and said, "well, you weren't that BAD. " Well, like no duh.

I can post letter after letter after letter from people that have been so screwed up by doing this that you would not believe. Everyone is not 'happy". Some are sick as hell as the surgeries can make whatever causes this just go crazy and cause so many side-effects on its own.

PLEASE, PLEASE BE SO VERY CAREFUL WITH THIS. All doctors, procedures are not the same!!! Make sure that you understand the risks, side-effects and get somesort of statement that there is a possibility of bringing you back the way you were.

STAY AWAY FROM STANFORD UNTIL THEY TRAIN DOCTORS BETTER, I would say. I don't want to stand in they way of anyone feeling better or anyone getting help. But.... BE CAREFUL. This is not a quick, cosmetic thing as advertised all over or as I thought it was. I thought, wow, just a couple hours in the hospital, a small scar and some relief after dealing with this for about 20 yrs.

Didn't work out like that at all. I am so tired of this, so ashamed that I was ever so stupid to risk anything to feel like this. It is simply beyond belief for me.


AGAIN, don't believe everything you read on this. Bear my experience in mind though it may be the worst of many.


Thanks.

Mike.
E-mail
Home Page
Updated 7/2/2002
 
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