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FibroFolksofSeattle

FibroFolksofSeattle@groups.msn.com

Symptoms/Syndromes & Conditions Associated With FMS

Seattle Area Meetings

Patient$s Bill Of Rights

FMS Travel Tips

FMS Cold & Flu Season

Press Release June 24, 2007

Nov 2007 FFOS Newsletter Pt 1

Nov. 2007 Newsletter Pt 2

Fibro Folks of Seattle Newsletter November 2007 Part 3

Lyrica Receives FDA Approval for FM

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- The Sponsor of the North Seattle support groups, the Arthritis Foundation.
But You Don't Look Sick.com - ButYouDontLookSick.com is about living life to the fullest with any invisible disease and providing answers to the endless questions of: But you don't look sick?
Fibrohugs - Fibrohugs is the best online support site there is. You will be amazed at the loveandfriendship you will find there. This URL is for the Introductory forum..you can "lurk" for a few days if you would like, to see what it is like. But please don;t be afraid to jump in and get to know everyone, and let them get to know you. There are numerous other forums..a medical one for medical type questions (tho you can ask them on the intro. forum also) a craft forum, a lupus, one for young adults, one for caregivers, the list goes on and on. There is also a chat room open 24/7 that is VERY well monitored so you can feel safe in there. Check it out, you will not be sorry. Sara
Seattle Fibromyalgia Meetup Group - "Meetup.com helps people find others who share their interest or cause, and form lasting,influential, local community groups that regularly meet face-to-face. We believe that the world will be a better place when everyone has access to a people-powered local Meetup Group. That is our goal." Meetup Groups help people: find other who share their interests get involved locally learn, teach, and share things make friends and have fun rise up, stand up, unite, and make a difference be a part of something bigger — both locally and globally Meetup Seattle currently is in the growth stage, with about 26 members listed, and monthly meetings taking place on Thursday evenings at the Maple Leaf Grill in North Seattle. There are also Meetups in Everett, Bellevue, South King County and Tacoma.
http://fmaware.org/index.html - The National Fibromyalgia Association is the group that selected Valerie to attend the Leaders Against Pain Conference in California in March 2005. They publish the *FM AWARE* magazine which includes extensive treatment, research, and lifestyle information. They support fibromyalgia research through networking, fundraising, locating patients to participate in clinical trials, information distribution, and helping to increase communication between researchers and the FM community. http://fmaware.org/index.html
Your Doctor Visit - Finding a doctor knowledgeable about FMS is often difficult. This site has information designed to make the process of finding a doctoreasier.
Oregon Fibromyalgia Foundation - Oregon Health Sciences University is a site with some of the leading researchers in the country, including Robert Bennett, M.D., who established the National Fibromyalgia Research Association in Salem, OR.
The Fibromyalgia Network - The Fibromyalgia Network provides a wonderful newsletter with the most up-to-date research information out there, as well as other information about fibromyalgia and chronic fatigue.
-	A Physician's Guide to Fibromyalgia - In addition to the information for physicians and other medical professionsl available on Devin's site, this site has information written for your physician by David Nye, M.D.
http://www.immunesupport.com -

World's Largest Fibromyalgia & Chronic Fatigue Syndrome Site!
· Over 3 million Annual Visitors
· 5,000 Fibromyalgia & Chronic Fatigue Syndrome Articles & Abstracts
· 300 Fibromyalgia & Chronic Fatigue Syndrome Items
Family Resources - Family support for those living with the challenges of fibromyalgia is often hard to come by. This site provides some help.
Men with Fibro - A *new site, devoted to the simple topic of "men with fibromyalgia", hence the name. It is hoped this site will become sort of a "home away from home" where men with fibro can come, chat, talk, learn, and fellowship one with another. It is for men with fibro. Women are welcome, but overwhelmingly, there are many sites devoted to women with fibro, and it is time for the male community to have a site devoted to the topic of men with fibro. Please understand, this is not a male only* site, but a site devoted to the topic of men with fibromyalgia. So if you have a loved one with fibro, this may be the right place to learn what makes him tick.
Devin Starlanyl's Website - Devin Starlanyl has written some excellent books on Fibromyalgia and Myofascial Pain Syndrome. This is her site.
Information about Medications - Medications are available to treat your various fibromyalgia symptoms. Do not believe any doctor who tells you there's nothing to be done to treat FMS. (Run, don't walk, to another doctor!) Because all fibro folk do not respond to meds the same way, often it will take several tries to find what works for YOU, but that doesn't mean you shouldn't try. Here's a site with the tried-and-true meds to use as a jumping off place.
Obtaining Social Security Benefits - Applying for Disability Benefits may not be what you WANT to do, especially if you are newly diagnosed. Be advised that you need to have worked 5 of the last 10 years to apply for Social Security Disability benefits - don't let this time period slip away while you wait to get better. Here's an excellent article to get you started when you are ready to file.

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