SUPPLEMENTS
Its very important that all supplements are taken after discussing this with the childs peditrician/nutritionist.
Always inform the child peditrician about the supplements the child gets, and what doses.
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RECIPE OF THE SUPPLEMENT "COCKTAIL"
FFF's suggestion of a supplement "cocktail".
The idea behind this cocktail is that all vitamins/minerals must be administered together to be effective. Bear in mind that all proof of the effect from this cocktail is anecdotal and inferred but supported by animal studies that are at least 50 years old.
RECEPI:
- Vitamin B12. B12 is an extremely important supplement and I suggest that you add it to the cocktail. Buy B12 sublingual. This pill that melts when placed under the tongue. Good absorption. 1000mcg/day (one pill) (see below where you can order)
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Childlife Essentials (amount is by age and follow instructions on the label). Childlife is a multivitamin and contains selenium and other trace nutrients. It can be purchased from webvitamins. (see below)
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Coenzyme Q10 (at least 100mg/day) - I suggest Q10 from Tishcon.com and can be purchased from epic4health.com (see below)
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Vitamin E - use liquid vitamin E since better absorption - should contain alpha and gamma tocopherol. Suggest at least 100IU/day and slowly increase up to 120IU. Can be purchased from webvitamins.com.(remember to take a blood test to measure liver profiles because vitamin E goes to the liver. Do the test before starting and check periodically (about every 6 months) to see that everything is OK.) Also remember to stop within 14 days before any surgery, if you give the child vitamin E. (see below) 1 drop = 12IU
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L-Arginine. 250mg/kg.
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L-Carnitine 35mg/kg. Maximum dose not more than 1000mg.
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These supplements must be given daily with no exceptions.
Important about vitamin E:
Remember doing a blood test to measure liver profiles because vitamin E goes to the liver. Do the test before starting with vitamin E, and check periodically (about every 6 months) to see that everything is OK.
Whats very important to know is that the livertest AST and ALT are high in our children. Its not an indication that something is wrong from the medication/supplements. These tests can not be used as a standard to drug control. Ana Lucia (FFF's pediatrician) say that the most important liver test our children should take to control the changes in the liver, is enzymes gama glutamil transpeptidase e fosfatasis alcaline. (GGT)
If you give your child vitamin E, stop within 14 days before ANY surgery. This is because the blood gets thinner, and bleading can occure after the surgery. Not a problem if you stop within 14 days before the surgery.
Safe products to buy:
Childlife Essentials http://www.webvitamins.com/product.aspx?id=1382 Multivitamin, contains selenium and other trace nutrients. (taste really good)
Vit. E, liquid http://www.webvitamins.com/product.aspx?number=CL-ECOMPLX-4Z (remember to take a blood test to measure liver profiles because vitamin E goes to the liver. Do the test before starting and check periodically (about every 6 months) to see that everything is OK.) 1 drop=12IU
Vit. B12 http://www.webvitamins.com/product.aspx?number=FS-B12SUB-100T&callingurl=search_results.aspx&callingargs=page%3d1 almost like a "candy".
Q-10 Liquid both products from Tishcon. The recommended doses should be on a daily CoQ10 dose of between 5 mg to 10 mg per kilogram body weight. Can be ordered at this site: http://epic4health.com/liquidcoq10.html 50mg/teaspoon (taste really good) or double strength liposomal at this site (taste really good too): http://epic4health.com/dostlisylico.html
L-Arginine. Suggested dose: 250mg/kg. This brand is for the youngest children. Liquid, and taste very good. http://www.tjclarkinc.com/liquid_larginine.htm containing 320mg/teaspoon.
For the older children this can be a good option: http://www.betterlife.com/prod_home_page.asp?prod_id=6047 Contains 1g L-Arginine. Tablet. No other vitamins.
Here is another product for the older children containing 1,5 g L-Arginine. Powder. http://www.betterlife.com/prod_home_page.asp?prod_id=1238
L-Carnitine Suggested dose: 35mg/kg. Maximum dose 1000mg.
This brand is for the youngest. Liquid, and taste very good. http://www.tjclarkinc.com/liquid_lcarnitine.htm contains 320mg/teaspoon
http://www.webvitamins.com/product.aspx?id=20135 This product contains 500mg and can be given to the older children. Capsules.
http://www.betterlife.com/prod_home_page.asp?prod_id=8951 Here is another product containing 500mg. Capsules.
For the children on Prednisolone/Deflazacort-treatment
For the parents who give their child Prednisolone/Deflazacort, its also very important to give the child Calsium, Magnesium and Vit. D. (They are working together)
Refering to Ana Lucia's article posted under the content Osteoporosis.
This is her recommendation of vitamin D and Calsium:
The recommendation of the daily vitamin D necessities is the following:
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young children and adults 200 IU
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adults over 51 years - 400 IU
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adults over 71 years - 600 IU
The recommended dose of calcium is:
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