Many of our children and their parents are strugling with the school system and the teachers. Most of the problems can accure because the teachers don't have enough knowledge about our children's disease. Here are some links to print out and give to the teachers.
"Some kids with neuromuscular disorders can write an assignment by hand -- at the price of great fatigue for the rest of the day." "To keep his fatigue at a minimum, Evan, 13, uses a scooter at school, though he's still ambulatory." http://www.mdausa.org/publications/Quest/q54school.html