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HELP FOR THOSE LIVING WITH CHRONIC PAINHELPFORTHOSELIVINGWITHCHRONICPAIN@groups.msn.com 
  
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Member lindag1984
My Web name is...But you can call me... linda g.
Pain generator(s) slight to moderate over exertion, stress, prolonged sitting or lying (difficulty sleeping) walking short distances, driving or riding in a car, all the usuals
Comfort measures which work for me...
hot baths, pain med (non narcotic) yoga exercises, meditation, relaxation and imaginery techniques, proper posture, weight control (to avoid extra stress on back), learning to set boundaries with family, to avoid un-needed stress from their lives, helping others, to decrease being on the pity pot.
Treatments/Procedures I've tried... chiropratic care, spinal injections of steriods, non surgical techniques.
Treatments/Procedures I Recommend.. chiropractic, massage
Favorite TV shows/books/websites.. various
Location.. tulsa, oklahoma
My birthday is... 6-21-51
These emotions accompany chronic pain... depression, anxiety, ptsd., coping deficit, memory deficit, loss of mobility,
If I could teachers doctors something it would be. walk a 1/4 mile in my shoes, because unless you have been where i am , you just don't understand
Date 10/2/1986
 
Member duetshetsky
My Web name is...But you can call me... sunny
Pain generator(s) l5s1,ect
Comfort measures which work for me...

i have been on meds,use cold and hot pads ,considering the idet as soon as its approved,on the brat diet,also have tryed message and anything that sounds like it might give pain relief.

Treatments/Procedures I've tried... to many to list
Treatments/Procedures I Recommend.. non surgery proceduces
Favorite TV shows/books/websites.. law shows,dont watch much t.v
Location.. ny
My birthday is... 30's
These emotions accompany chronic pain... pain,guilt,depressed,fogged memory{meds},low energy, miss the work force, people dont understand or just over look it because there fine.
If I could teachers doctors something it would be. that they see just that are lives are doctor apptment and they need to look at how to help patients fill the gap in life that was taken away by are pain.they seem to look and treat us alot like a number and need to realize what family members go through as well
Date 1/1/2001
 
Member MSN NicknameM_ady7
My Web name is...But you can call me... Cheryl
Pain generator(s) Walking...ankle movement or non movement hurts all the time.
Comfort measures which work for me...
Soaking my ankle in really warm water, sometimes Ice helps, massages, Endocet, Oxycontin, Effexor. Support from friends and family, my dog boo, and that antics of my crazy cats maddy, camper and rags.
Treatments/Procedures I've tried... I have had 2 total ankle replacement surgeries, Will have to have surgery again here shortly to repair some damage before I have a custom built talarcomponent put in in December.
Treatments/Procedures I Recommend.. I don't recommend ankle replacement to any one under 60.
Favorite TV shows/books/websites.. Law and Order, A Road Less Traveled, and the website artificle ankles. I used to hike a lot and really miss the getting out in the backcountry. I have a 4X4 now but it is still not the same as hiking but can not complain least I am getting out. I love growing flowers Dalia's are my favorite. I love arts and crafts I like working with my hands and making all kinds of stuff.
Location.. Hoquiam, Washington
My birthday is... 12/17/60
These emotions accompany chronic pain... anger, selfpity, frustration, Depression.I try to do to stay active but the more active I am the more pain meds I have to take if I over do it I cannot walk the next day even if I take my pain meds.Very hard to stay positive all the time.
If I could teachers doctors something it would be. To treat people as they expect to be treated, and to be honest.
Date 1/1/2001
 
Member PARANOID
My Web name is...But you can call me... Greg
Pain generator(s) Lower back, L3,4 / L4,5 / L5, S1
Comfort measures which work for me...
Due to a workplace accident in 1989
3 spinal ops, 1990, 1991 and March 2001.
 
Now another adventure into the world of appointments, pokes, prods, injections
the works.
 
I'm off to see the wizard (surgeon) again
next week to see if I need the knife again.
At this stage it's not looking too good.
Treatments/Procedures I've tried... Lamonectomies, MUA's manipulations,
Treatments/Procedures I Recommend.. Proper massage, medication and walking
Favorite TV shows/books/websites.. Dark Angel, it would be nice to re-generate damaged nerves and tissue.
Location.. Melbourne Australia
My birthday is... 9th March
These emotions accompany chronic pain... Wow, the lows and highs, 1990 wanted to suicide, 2001 still kicking, but back on the merry go round.
If I could teachers doctors something it would be. To address patients as equals.
Date 1/1/2001
 
Member MSN NicknameRainey33111
My Web name is...But you can call me... rainey
Pain generator(s) Rheum. arthritis, osteo. arthritis, and osteoporisis
Comfort measures which work for me...
Ice, Tylox taken when pain gets unbearable, rest helps sometimes, exercise helps sometimes. 
Treatments/Procedures I've tried... chiropractor, physical therapy, pain medication, surgery on face
Treatments/Procedures I Recommend.. ????
Favorite TV shows/books/websites.. My hobbie is handknitting. Knitting websites
Location.. Pennsylvania
My birthday is... 1-28-47
These emotions accompany chronic pain... loneliness, frustration, anger sometimes, wonder why me
If I could teachers doctors something it would be. Listen to me. I'm in great pain even though I don't look it. Nights are very painful and never have restful sleep.
Date 1/1/2001
 
Member smiler
My Web name is...But you can call me... tim
Pain generator(s) stress,effort,any movement for to long.
Comfort measures which work for me...
positve reading and meeting people in same situation.Take one day at a time.Make the most of everything you can do and try to enjoy the simple things?
Treatments/Procedures I've tried... Tried them all in last eight years
Treatments/Procedures I Recommend.. Councilling
Favorite TV shows/books/websites.. Documentarys
Location.. Ireland
My birthday is... Cobh County Cork
These emotions accompany chronic pain... depression,failure,unloved,pity for my family
If I could teachers doctors something it would be. treat me with respect and dignity
Date 1/1/2001
 
Member cyclone
My Web name is...But you can call me... Joan
Pain generator(s) Hit by drunk driver , head on , 130 mph
Comfort measures which work for me...
On some injury sites heat on others ice and depending on which is hurting worst on any given day alternating both , hot tub , massage , loving concern from friends and family , sometimes a real good laugh , i tried crying and it just don't help so i try to laugh instead . somedays its realllllly hard .
Treatments/Procedures I've tried... 14 surgeries on legs , one on left uppper abdomin , pt , massage therapy , cortosone shots , walking aids , special shoes , botox , stubborn determination !!!!
Treatments/Procedures I Recommend.. botox injections for neck , shoulders and upper back , massage therapy , laughter
Favorite TV shows/books/websites.. weakest link , crime story type shows , i read pretty much all types of books , i like to do needle work , play piano , bake when i can
Location.. Saskatchewan , Canada ( cold place to be right now )
My birthday is... May 20 , 1952
These emotions accompany chronic pain... anger , fear, despair , wanting to hurt the person who did this to me and finally forgiveness and acceptance that i will never be the same as i was .
If I could teachers doctors something it would be. humor and don't underestimate your patients sheer will power and determination, or in some cases stubborn iron will
Date 1/1/2001
 
Member MSN Nicknameßaß?™
My Web name is...But you can call me... Deb
Pain generator(s) Arthritis, reflux, hiatis hernia
Comfort measures which work for me...
I am still working on figuring that out. I am on Vioxx but it doesn't seem to work enough, so I take tylenol all day too.  It is worst in my thumb and 2 next finger, my hips and back nad wrists.  I have to be very careful what I eat, which is really hard
Treatments/Procedures I've tried... Celebrex, vioxx, tylenol. Heat, cold
Treatments/Procedures I Recommend..
Favorite TV shows/books/websites.. tlc, life, wtn staions on tv and
Location.. Ontario
My birthday is... April 7, 1961
These emotions accompany chronic pain... Anger, embarrasement, pity,
If I could teachers doctors something it would be. empathy
Date 1/1/2001
 
Member samantha
My Web name is...But you can call me...
Pain generator(s) L4-S/1. C-5/6
Comfort measures which work for me...
Treatments/Procedures I've tried...
Treatments/Procedures I Recommend..
Favorite TV shows/books/websites.. Coping With Chronic Pain, Nelson Henler, MD, 1987 is a good book, I like Bernie Mac, Wed Night 9 PM on Fox, Like Sunday Football Sep-Jan, Road to theFinal Four BBall March, MPT, New: Bob on Mon, NBC morning shows 7-9 , CBS Nightly News, 48 hrs, Dateline
Location..
My birthday is...
These emotions accompany chronic pain...
If I could teachers doctors something it would be.
Date 1/1/2001
 
Member MSN Nicknamemiscrapbooker
My Web name is...But you can call me... misscrapbooker
Pain generator(s) c1, c2,
Comfort measures which work for me...
Hot or cold packs,  massages , meds of course!  Hot tubs , injections sometimes. Been disabeled since 1989
Treatments/Procedures I've tried... Everything just about,tens unit,hot cold packs, steroid injections, accupuncturee, hypnosis,massages, meds, all kind of over counter gels, vibrators,hot tubsanything I can think of I have tried for RELEIF!
Treatments/Procedures I Recommend.. massage, heat,or cold packs, hot tub, relaxing music, hobbies, something to try to help get your mind off of it, someone to talk to about it, try your best to RELAX and be good to yourself no matter what!
Favorite TV shows/books/websites.. Home redo shows, craft shows, diy.net, ebay,
Location..
My birthday is...
These emotions accompany chronic pain... trouble sleeping, concentrating good, problems doing much house work or lifting heavy objects, cold weather, spasms, depression, have considered suiside but wouldn't, feelling of not worth anything, wish I could work and be like I use to be, feel cheated in life. Still try to do things I use to do then pay for it with pain BIG time afterwards. sometimes feel like family thinks I am just wanting attention, get paranoid and maybe it isn't even so what I get to thinking!!!!
If I could teachers doctors something it would be. Wish they would work harder to help me, not treat me like I am STUPID, and another patient just making money off of me,wish he could be in my shoes just for a week then see how he would change. Would try to work harder at helping me get out of this terrible PAIN!!
Date 1/1/2001
 
Member butterfly
My Web name is...But you can call me... Kelly
Pain generator(s) TMJ, fibro, chronic headaches,fatigue,depression
Comfort measures which work for me...
Hot tubs, ice packs, heat packs, massage thearapy (not physical trpy. to hard of a massage makes muscle spams worse), pain patches, muscle relaxors, botox. sometimes nothing works.
Treatments/Procedures I've tried... 2 jaw surgeries,trigerpoint inj. thearpy to many to list and remember
Treatments/Procedures I Recommend..
Favorite TV shows/books/websites.. NYPD Blue, Philly, Alley Mcbeil,ER,Funny home vedios, All my children, one lif to live, general hospital,game shows, whos line is it, I have started reading Danael Steal books
Location.. kingston , Tennessee
My birthday is... march 26 1966
These emotions accompany chronic pain... Extream depression, I feel like I have been striped of my life and who I am. I used to be very active and now I can't do the things I love most. The outlets that I had to take me away are now painful. I can't do the things I want with my child and husband. Then I had to quit my job and take disability which has added more stress due to the fact that the company I worked for is still fighting it and I have been in legal battles with for 3 years now.
If I could teachers doctors something it would be. If I could teach doctors something it would be that if they decide to help people in chronic pain. They should relize that this in not just a pain that is temp. and that we don't just want pain meds we want reliefe. I wish they could feel for one day just a portion of our pain and frustration.
Date 1/17/2001
 
Member brina111371
My Web name is...But you can call me... brina111371 ;Brina
Pain generator(s) charcot marie tooth,neuropathy pain,migraines,ruptured disk,osteoporosis
Comfort measures which work for me...
Sometimes heat or cold,mostly staying on my meds. as prescribed.
Treatments/Procedures I've tried... All different meds.,and that's all they say I can do at this point.I've had surgeries and pt. and even been to the chiropractor.
Treatments/Procedures I Recommend.. Staying as active as I can.Wateraerobics does wonders and then hitting the hottub.
Favorite TV shows/books/websites.. I'll watch almost anything,love to read anything by Danielle Steele,love to read period,I like animal planet,lifetime,tlc,history channel,anything educational.
Location.. I live in the beautiful Great Smokey Mountains in East Tennessee.
My birthday is... November 13,1971
These emotions accompany chronic pain... I've tried the suicide thing(isn't me).I feel cheated,depressed,confused,mad,but grateful I still get around as well as I do.
If I could teachers doctors something it would be. Not to give up so easily.There is a higher power.Have a little faith.
Date 5/3/2001
 
Member kat209
My Web name is...But you can call me... Kat
Pain generator(s) lupus, itp, chronic headaches, back&neck pain, arthritis, etc
Comfort measures which work for me...
heat, cold, light massage, pain patches.
Treatments/Procedures I've tried... botox injections, PT, chiropracter, etc.
Treatments/Procedures I Recommend.. hot and cold packs, light massage
Favorite TV shows/books/websites.. lifetime movie network
Location.. minnesota
My birthday is... 10/29/1966
These emotions accompany chronic pain... anger, pity, helplessness, unworthiness, suicidal pain levels
If I could teachers doctors something it would be. treat the paitient, not just the disease.
Date 5/13/2001
 
Member MSN Nicknamechrncpainer-manager
My Web name is...But you can call me... chrncpainer/patti
Pain generator(s) SI joint;RSD/CRPS;pudendal canal;Sciatic nerve
Comfort measures which work for me...
Hot tubs help muscular aches and pains, but worsens nerve pain sometimes. I sleep in a recliner which keeps my legs from swelling. Also I used to wake up in terrible pain when I slept in a bed. Massages are wonderful when I can find someone in the family to give me one.
Treatments/Procedures I've tried... Caudal block/facet injections/sympathetic nerve injections/accupuncture;trigger point injections/physical therapy;medications
Treatments/Procedures I Recommend.. Sympathetic nerve injections/trigger points inj./physical therapy/accupuncture helped my bone pain,but not the nerve pain.
Favorite TV shows/books/websites.. I love all the judge shows/real life dramas/Discovery health channel and all the shows on it.
Location.. I live in the midwest of the USA
My birthday is... May 14
These emotions accompany chronic pain... depression,frustration,anger,hopelessness etc
If I could teachers doctors something it would be. not to be above learning something from your patients.
Date 11/19/2001
 
Member Cricket
My Web name is...But you can call me... Cricket....lets start with that
Pain generator(s) Sitting/standing/walking for prolonged periods, lifting, pushing, generally any prolonged activity
Comfort measures which work for me...
Massage therapy (when I can get a treatment plan approved).  Hot Tubs or even better yet Air Tubs. I am attempting to learn meditation.  Relaxation CDs.  The shoulder of my best friend or fiance.
Treatments/Procedures I've tried... Massage therapy, physiotherapy, Tylenol #3, muscle relaxers, anti inflammatories
Treatments/Procedures I Recommend.. Hot/Air tubs, massage, appropriate pain medication
Favorite TV shows/books/websites.. ER, Friends, the new show 24. Oprah recommended books and anything that Dr. Phil says!
Location.. Windsor, Ontario Canada
My birthday is... January 17, 1972
These emotions accompany chronic pain... frustration at not being able to have a career or social life (as before), helplessness
If I could teachers doctors something it would be. Some people learned as children to "suck it up!" and developed a "no longer useful" skill called departmentalization. Just because a patient doesn'toutwardly exibit pain doesn't mean she is looking for her next score of pain meds!!!!!
Date 11/20/2001
 
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