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The Team
 

 Cara

 Cara091  Manager 
 Nicky  NicMitchell  Manager
 Heather   Hebes   Manager
 Angharad    haddy_83   Manager
 Jen  Cutie_pie_Jen    Assistant Manager    
                       
 

Cara

My name is Cara and I am the founder and Manager of this website.  I have suffered with Hypermobility Syndrome since I was 11 years old. My HMS symptoms have re emerged recently.  I live in Mid Wales with my fiance Richard who also has HMS very severly, so we help support and understand each other well. I hope that this website gives you the help and support that you need.  All the best, Cara.xx

 

 

Nicky

Hi, My name is Nicky, I am 28 years old and I have EDS and Fibromyalgia.  Iive in Gloucestershire with my 5 children and numerous pets!  I was first refered to the hospital at the age of 4 with joint problems, 25 years,several surgeries and countless years of pain and unsteady joints later, I was finally diagnosed with EDS, at the same time as my 3 year old son.  I find this group a wonderful source of support and hope you will all to.  Nicky.

 

Heather

 

Hi, i'm Heather. I am a 43 year old professional violinist and Union Health & Safety Rep based in the West Midlands, UK.  I was offically diagnosed with HMS 4 years ago.  However, I have had pain since I was a small child, and ankles and knees used to give way.  My Christian faith has really helped to keep me going.  I also laugh alot and like to make other laugh, (as Nicky will tell you) especially if I am using voice recognition software! I hope that you all enjoy the fun, support and friendship here as much as I have. Heather.

 

 

Angharad

  

Hi, my name is Angharad, I'm 23 years old and live in Cardiff, UK with my partner.  I've just completed my 3rd year training to be a doctor, having returned in Sept 2005 after I had to take 2 years out due to HMS, depression (now sorted) and a few ops, but i'm back now thanks to my funky new set of purple wheels! I want to specialise in rheumatology eventually (for obvious reasons!) I've had problems for 10 years, and dislocated since birth, but only got diagnosed in 2002.  This site has given me so much, take care.  Angharad / Haddy xx

 

 

Jen

 

Hi My name is Jen and I am 23 years old and I have Ehlers-Danlos Syndrome type 3, I live in Milton Keynes (Buckinghamshire). I had a horse riding accident when I wsa 12, i was riding bareback and fell off and hit a double wall. Until that time in my life things were normal, I was always into gymnastics and they couldn't understand why I was so good at it. The only thing that my mum ever noticed about me (with EDS) is that when I held her hand when I was little and she said that my thumb just dissapeared and she thought that it was very odd, but thought no more about it.

After the accident I went to a specialist after a year of things not improving, and now i know that everyone will be able to relate to this, I was sent to specialist after specialist with no luck. When I was 2 weeks before i turned 16 I met my consultant who said I had HMS at 19 1/2 things didnt seem to match with what we knew about HMS. And i was finally diagnosed with EDS by a Doctor in London. Unfortunatly its been down hill since then, mainly the last year to 2 years.

I hope to get to know you all soon, I have been away for nearly a year most of which I spent in hospital, but I'm back now!

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