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Dylan Wade Brown

         

Hi, my name is Dylan Brown. This year I turned 9-years-old.  Although I was born with Neurogenic Arthrogryposis, and have a hard time moving my arms and legs, I do everything everything else does. I am in 4th grade this year and one of the smartest in my class, just ask me.   My favorite subject is lunch and recess, my least, Math.  I love making things blow-up, especially my Math homework.   I am really into Dragonball Z, Naruto, and any Japanese Anime.  I love surfing the Internet, especially YouTube and playing MechQuest or Dragon Fable.   

 

My little brother's name is Casey who is 6-years-old.  We fight just like any other brothers, but I really do love him, just don't tell him I said that!!  He helps me do a lot of the things I can't do, but then makes it a point to get on my nerves.  If I could I would "whoop him."  If you want to take a look, you can check him out on Casey's page

If you would like to learn more about Arthrogryposis please visit the websites Mom and Dad posted.  They are very informative, but keep in mind, I am not your typical kid in any way, shape, or form.  I am only 1 in 300,000 kid's born with a neurogenic type of Arthrogryposis.  My doc's believe it is a genetic disease, which is acutally a mutated form of Spinal Muscular Atrophy.  The good thing is, it is a non-progressive disease, which means I shouldn't get any worse.  The bad thing is not only are my joints affected, but so are my nerves.  They don't talk to my muscles like they should, which makes life even more of a challenge for me.  But believe me, I love a good challenge.

The doc's told my mom and dad I would die during my birth or shortly after, and even if I did survive, I would suffer from severe brain damage.  Can you tell I'm stubborn?!  Even now after muscle and nerve testing, my doc's say I am a medical mystery.  They say there is no way I should be able to do what I can.  I say, "you shouldn't tell me I can't.  I will find a way!" 

Click here to see the pictures!

I really love getting mail so please e-mail me at: Dylanbrown1998@hotmail.com

PS.  I got to be an Ambassador for Variety - The Children's Charity.  Variety helps kids like me get some of the equipment we need.  They also have really cool events.  You can check out their website at:  http://www.varietyphila.org

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