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Leri Weil Syndrome is a rare condition. It is passed on through genes and when first diagnosed can be very worrying with many questions that no-one seems to know the answers to. Leri Weil can be very painful to the wrists or hands and sometimes other parts of the body, causing not just physical pain but also causes mental stress. Because with Leri Weil short stature is part of it, this can be an almighty challenge in itself. Making you feel different and you don't fit in with society. This group was set up to bring together those who either have, care or know anybody with Leri Weil. To help each other and share your stories, to meet new friends and general chat. |