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Leri Weil syndrome/madelung/short statureLeriWeilsyndromemadelungshortstature@groups.msn.com 
  
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Leri Weil Syndrome is a rare condition. It is passed on through genes and when first diagnosed can be very worrying with many questions that no-one seems to know the answers to.
 
Leri Weil can be very painful to the wrists or hands and sometimes other parts of the body, causing not just physical pain but also causes mental stress.
 
Because with Leri Weil short stature is part of it, this can be an almighty challenge in itself.  Making you feel different and you don't fit in with society.
 
This group was set up to bring together those who either have, care or know anybody with Leri Weil. 
To help each other and share your stories, to meet new friends and general chat.
 
 
 
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Growth Hormone
Hello Everyone,   I wanted to update you on a few things.  First, my son did have genetic testing and it did come back positive for the SHOX defect.  He does ...
MSN Nicknameladyg276   07-16-08
about GP s
it says i am logged in. but when i go to post something it tells me i need to be a member. when i try to rejoin it tells me my email is already a member. i have been looking for a specialist fo...
heidirific   07-10-08
about GP s
Hi first you have to sign in. Then click reply on the post and type your message. With regards to your question, surgey, there are others on the site that have had surgery a...
MSN NicknameStar-shine7   07-09-08
about GP s
I have a question how do i post on the message board itself i am a member but it won't let me post anything.. Does the surgery help or hurt on people with madelungs? From: LeriWeilsyn...
heidirific   07-09-08
 
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  New Photos View all  
and again wat u do all the time
MSN Nicknametahnee_bananee 06-01-08
mucking around
MSN Nicknametahnee_bananee 06-01-08
ME
MSN Nicknametahnee_bananee 06-01-08
stuff i do all the time but have madelung defromity
MSN Nicknametahnee_bananee 06-01-08
Albums with New Photos
ME
Chloe 9.12.2006
Ashley
Bernardo
 
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