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Welcome to Linda's PLD polycystic liver disease support group. Feel free to tell us how you are doing, anything you have found helpful, or any difficulties you might be experiencing. PLD is inherited either with kidney cysts or without. Medical treatments include: minimizing exposure to hormones, caffeine, and false estrogen. We are hopeful that the Octreotide Clinical trials will diminish liver cysts. This trial is recruiting participants. Surgical options include liver resection, liver transplant, and liver artery ablation. Pain is the most common symptom reported from extensive liver cysts. For unique cases with a few large cysts or with many exophytic liver cysts deroofing may prove helpful. 75% have this procedure repeated. This does provide a temporary debulking while one is awaiting a transplant or resection. Splanchnic denervaton is useful for chronic pain relief. Send an email or listen in to any of the discussions. We welcome each of you. |
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The Octreotide study
Chrissie, If Dr. Hogan said you will receive the octreotide on your 13th injection, then you will receive octreotide on the 13th injection (at the end of the fir...
  ihavepkd
05-09-08
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Genetic testing
Jennifer, Depending on the study you're in you may or may not find out the results of the genetic testing. I'm in one study with Dr. Peter Harris that's exploring the link i...
ihavepkd
05-09-08
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How do I find a Specialist in my area
Dear Deborah,A very warm welcome to you. I have a friend who received a liver transplant from Leeds Hospital in the UK. The docs there were not too keen to do a liver resection at that time. If he...
PLDiane2
05-09-08
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Just found cysts.
Wow, Ruth! You really know a lot! Do you have a medical background, yourself? I'm going to see the obgyn on the 27th. I've requested a copy of my MRI records. I hope...
babstate
05-09-08
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