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If there are any other men out there who have been diagnosed with Kallmans Syndrome as myself, left with usual results of having very small genitals and the inability to develope much muscle mass, I would sure like to hear from you. You may be feeling as isolated as I did with this disorder, not to mention feeling like a guinea pig with so many tests and treatments. It is so important that we get together here and help support and inform eachother. The ultimate would be to get the medical profession to connect here also and assist to develop a KS Society, giving us a voice and a better awareness of ourselves and our lives with KS. AJ Welcome to all. |
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Long time sufferer, first time speaker
Great news LTrayn. It is heartwarming to know that the site and the members here have a great support and to hear that you are well on your way in your diagnosis and therapy, with the support of a gre...
 AJ_Wpg1
07-07-08
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Long time sufferer, first time speaker
Well just a little update to everyone who has given me advice, I have decided I will be seeing an endocrinologist next week. I have already had a little preliminary tests done ahead of said...
 LTrayn
07-07-08
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KS -V- KS We have a lot in common
Hello Everyone, I wanted to introduce myself and be up front about me and why I am here. Below I am going to show a medical list and as far as I know there are only 2 of us in the world. My titil...
 ironriverwolf
07-06-08
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Updated website
The layout looks nice and inviting. The word organization is spelled "organisation" on the front page, however.
 DiggerJ
07-06-08
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