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Mystery ER January 18, 2008

Arunas Brizgys had many odd symptoms that came on suddenly - but all tests looked in normal range

http://www.porphyriafoundation.com/pat_stories/brizgys.html

Sudden onset 4 years ago & then add on issues:  stomach pain - diarrhea 3-5 days at a time off and on - Sore throat - Rosie skin color - a different pigment on skin - Tingling in hands - Difficulty walking - High Blood Pressure - Chest pain - Palpitations - Drowziness - Vision Problems - Weakness - Fatigue - Pain - Very low Potassium & Sodium levels

Why?

"I'm convinced that metabolic features (changes in cholesterol and lipid profile, changes in glucose uptake and cell use, mitochondrial diseases and so on) are among main underestimated issue of 2-BE," says a French journalist

 

Felix Sabates, MD, FACS his ER doctor found his urine turned purple when set into daylight for a day. http://www.sabateseye.com/doctors/bio/fsabates.html
 
Arunas Brizgys was eventually given a diagnosis of Acute Intermitant Porphyria
 
 
My e-mail which I hope will reach Dr Sabates:

Dr. Felix Sabates may may like to add the info on a chemical exposure that would cause such health issues as Arunus Brizgys had

Because of sudden onset, it should be considered among the many health issues caused by exposure to 2-butoxyethanol.  The cause of CFIDS and a great deal of eye damage, diabetes & autoimmune issues in general, birth defects, etc

Most probably he would have the 'slow cook' variety of Autoimmune Hemolytic Anemia doctors are looking for the CFIDS population; but it doesn't show up as they expect.

     The EGBE list    http://groups.msn.com/MysteryDiagnosis/theegbelist.msnw

     THE Fatigue       http://groups.msn.com/MysteryDiagnosis/thefatigue.msnw

 

On a personal note ... Margaret Diann "As a baby boomer with teratogen effects of poisoning of my dad during WWII ... I have adult onset diabetes, and other autoimmune metabolic issues.  My eyesight went from better than 20/20 ... to having difficulting reading the top line on the Driver's license chart.  In fact I now have a stigmatism (A late to show up 'birth defect')"

Birth Defects

 

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