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Welcome to Pyruvate Kinase Deficiency Support Group !
Pyruvate Kinase Deficiency Topics The information provided herein should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. This site links to other websites for information only. Some of this information is not availble yet. It will be added soon. Last updated : 03-28-2007
Important announcement ! If you are in the USA and want to take the SQUID test, please call Zahra Pakbaz, MD CCD at Chidren's Hospital Oakland Research Institute. Her phone # is 510 - 428 - 3885 ext. 4248. You need a doctor's order. Then call her to make an appointment. If you are in Europe and want to take the SQUID test, call SQUID-Department, University Hospital Hamburg-Eppendorf in Germany. Tel : +49-40-42803-2389, -3389, -4796 Fax : +49-40-42803-4797 E-mail : rkongi@uke.uni-hamburg.de
Attention : Medical Doctors You are very welcome to leave any comment or message here. Please go to Doctors Forum in this site.
All messages to Pyruvate Kinase Deficiecy Support Group will be screened by managers due to a high volumn of junk mail. Any messages that are not related to PKDSG will be deleted. All other messages will be posted on the message board within 1 or 2 days. |
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requesting any information
Hi Tina, I am A negative. I receive A negative and O negative. I received always A negative since a year ago. Like I said in my previous post, the blood is test at a ...
  Peartree_Girl
08-29-08
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requesting any information
Thank you Dore. I am actually not a match for Sarah, though I have close freinds & family who are. I spoke with a person from Red Cross Yesterday. They said it would cost me $70.00 per donati...
Baby_PK
08-29-08
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requesting any information
The problem is that, as far as I am aware, the blood is only good in the bank for around 45 days. My wife donates for our son, but when his transfusion schedule doesn't match up with her donations so...
gargas7
08-26-08
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requesting any information
If I understand it well, than you want to give blood for your child?
General, I know that it's possible to donate blood if you are ok.
In the Netherlands it's forbidden to dona...
Peartree_Girl
08-25-08
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