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My sarcoidosis and I
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7children1
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brooklyn, N.Y
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I have Pulmonary sarcoid that effected my lung and joints, but I'm still trying to on by the grace of GOD.
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Alley
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Linton,Indiana
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Pulmonary sarcoidosis,also eyes,skin,Pulmonary Hypertension,Asthma, Congestive Heart Failure,Osteoporosis,Cronic COPD, Idiopathic Pulmonary Fibrosis
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Alliee
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Liverpool, United Kingdom
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Pulmonary sarc
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allilb - Allison or Alli
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Franklin, Tennessee
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I am 39. I started having Sarcoid symtoms around 2000. Heart – pericardial tamponade cardiac window performed. Arrhythmias. Neck - masses/granulomas wrapped around carotid arteries on both sides of my neck. Mediastinal masses/granulomas encasing areas of the chest and other organs. Left temple - masses/granulomas now also attached to skull. Right Ovary - attached to bowel. Right ovary removed and tissue removed from Bowel. I am currently on PREDNISONE for the second time. Weight gain from that. Worried about my eyes, and generally all over. Fatigue, night sweats, memory loss, and I fall a lot too. I will stop writing a book with my symptoms. LOL Laughter is the best medicine!!
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Alwayzalady1
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Florida
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sarcoid of the liver and spleen, asthma, diabetes,high blood pressure and kidney inflammation-possibly sarcoid,according to Doctor!
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Andrea22850
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Ontario, Canada & Puerto Plata, Dom. Rep.
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Pulmonary Sarcoidosis
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Angel_Mom324
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Columbus Ohio
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refractory sarcoidosis
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angelkittync
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Little Rock
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28 yrs old, Sarcoidosis of colon, spleen, lymph nodes, liver, Possibly muscles, neuro
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Anita Acosta
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New York City, Bronx, New York
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I have Stage I Pulmonary Sarcoid, I have had optic neuritis (inflammation of optic nerve) causing blurred vision in left eye and I'm currently suffering from joint swelling and pain of joints, mostly knees and ankles.
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AuntMolechelle
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Northern Michigan
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Sarcodosis, left lung and eye involvement. I was diagnosed in 2003 after misdiagnosing me with MS. I am 38, married with a 16 year old daughter and 14 year old son. I work full time and am hoping to enjoy life again if I can only get the right treatment.
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Autumn643
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Manhattan, Kansas
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Pulmonary Sarcoid, Joint Pain, Degenative Disk Disease (Arthritis in my spine), I'm a single mom w/ a 16 yr old daughter and an 11 yr old son. I work full time at a job I love w/ great boss! Good days & bad days, fighting the rollercoaster.
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barbara
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illinois
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sarcoidosis all over the body, on the brain, heart, lungs, liver, spleen, bones, kidney, all over
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Bohunk
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California
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Sarcoid, high blood pressure, fibromyalgia, CFS, Chronic Depression, fatigue, joint pain, insomnia, loss of memory, sciatica in both legs, degenerative disc disease.
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bylina (Shirley)
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Alabama gulf coast.
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sarcoidosis and diabetes. They started simultaneously and it has been a daily struggle. I have constant pain, particularly joint pain and an unusual tingling sensation in my upper back. Has anyone else experienced this?
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ChandyLove
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Live in Omaha Nebraska/North Carolina is home
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Sarcoid induced asthma, dicoid lupus, fibromyalgia, foot pain, numb fingers, bells palsy, cataracts, swollen ankles, tingling sensation in back, floaters, balance problems lose of memory, speech problems, and wt gain.
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chefsonja
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Jonesboro, GA
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Sarcoid involvement liver, joint pain, pulmonary, gastrointestional, Bells Palsy (Both side of face), granuloma skin and scalp, lymph nodes, IBS. Nolonger bothered with pain in my feet or fatigue. I give God the glory, and always give a daily expression of gratitude to God. I can't thank him enough!!
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cheldee72
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KS
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neurosarcoidosis/ optic chiasm
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chellebabe32
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chicago
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sarcoidosis
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cjay
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Lawrenceville, Illinois
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had sarcoidosis lungs, eyes, skin currently just eyelid and eyes
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clhhoney
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Oregon
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sarcoid of the lungs, asthma
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Dawn
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Maryland
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pulmonary sarcoidosis, lymph nodes, hypercalcemia, hypertention, prednazone induced diabetes, asthma, kidney stones, swelling parotid glands, fibroidtumors, extreame fatigue, muscle & joint pain.
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divasdelights
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Hayward, CA
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I'm a 49 yr old African American woman with Pulmonary Sarcoidosis, stage 3. I've had a deep cough for many years, so I believe I've had Sarcoidosis for a long time, but was only only dx last year, 07\04.
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DJ_AlbertaCanada1
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EDMONTON,ALBERTA CANADA
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SARCOID ALL OVER MY BODY OVER THE LAST 15 YEARS
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Drea3732
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Palm Springs, CA
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pulmonary sarcoidosis, some eye and neuro involvement
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