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The IP Friends and Family ConnectionContains "mature" content, but not necessarily adult.TheIPFriendsandFamilyConnection@groups.msn.com 
  
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This page has been made for people dealing with Incontinentia Pigmenti. Whether it's you or a family member that has IP. We are a group for support & information. We are here to listen and share the good time's and the bad time's.

IP is a very rare disease. Not many people know about it. Which make's it hard when trying to find a group that you can talk to. We all know that not every case is the same. Some Cases are very severe and some are mild. But this group is so that you know your not alone. We want you to feel comfortable talking about your situation. We want to get to know all of you better.
To ensure privacy so you can feel comfortable opening up to us. We have restricted our group so that no one outside of the group can read your post's. We know how hard it is to talk about IP. We have all been there. We have all had people look at us or our children funny.
I hope you join our group. We would love to have this group grow and Meet more people dealing with this Disease.
If any questions you may contact Tammy or Cindy or Debbie. We are the manager's of this group.
 
 





  

 

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