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The IP Friends and Family ConnectionContains "mature" content, but not necessarily adult.TheIPFriendsandFamilyConnection@groups.msn.com 
  
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This page has been made for people dealing with Incontinentia Pigmenti. Whether it's you or a family member that has IP. We are a group for support & information. We are here to listen and share the good time's and the bad time's.

 
IP is a very rare disease. Not many people know about it. Which make's it hard when trying to find a group that you can talk to. We all know that not every case is the same. Some Case or very severe and some are mild. But this group is so that you know your not alone. We want you to feel comfortable talking about your situation. We want to get to know all of you better.
 
To ensure privacy so you can feel comfortable opening up to us. We have restricted our group so that no one outside of the group can read your post's. We know how hard it is to talk about IP. We have all been there. We have all had people look at us or our children funny.
 
I hope you join our group. We would love to have this group grow and Meet more people dealing with this Disease.
 
If any questions you may contact Tammy or Cindy or Debbie. We are the manager's of this group.

 

 

 

 

 

 
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Purplish Legs and Feet
Glad everything turned out fine. And you keep being Catie's biggest advocate!!!!!!
MSN NicknameAnIPMom   07-17-08
Purplish Legs and Feet
Thanks for the reply. I took Catie to the Pediatrician, who doesn't think there is anything wrong. He basically thinks I'm a little over protective. I guess I am, but I'd rather be safe than sorr...
MSN Nicknamemandoberry   07-16-08
Purplish Legs and Feet
Our Rachel, who also had a stroke, has experienced this is in her legs and feet.  We had her checked by pediatrician and cardiologist and everything was fine.&n...
MSN Nicknamerlanemom   07-16-08
phase 2 lesions
Sashi, I thought it sounded like a stroke as well. Catie has mild damage (so we think) to the frontal lobe of the brain. The frontal loab holds the "speech center," and Catie also has ...
MSN Nicknamemandoberry   07-11-08
 
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Nightly routine!!
MSN Nicknamemandoberry 06-30-08
Unhappy lil camper!!!
MSN Nicknamemandoberry 06-30-08
Catie feeding her baby!! What a good little mommy=))
MSN Nicknamemandoberry 06-30-08
Just chillin pool side=))
MSN Nicknamemandoberry 06-30-08
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Catie
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