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 CONFERENCES, LECTURES AND AWARENESS PROJECTS
 
 

 

Date: Saturday, March 10, 2007

Place: Robert Wood Johnson University Hospital

Time: 11:00 a.m. to 5:15 p.m.

The conference will include three key sessions:

1) The CFS Public Awareness Campaign session. This session will include a showing of the

campaign public service announcements, video clips of key media coverage and an overview

of campaign goals and highlights from CFIDS Association president and CEO Kimberly

McCleary. In addition, Jacqueline Niederle and Brian Bernard, two photo

exhibit participants, will share their personal experiences as patients and

advocates.

2) Research session. Dr. Nancy Klimas, University of Miami

3) Clinical session. Dr. Alan Pocinki, internal medicine practice

The new traveling CFS photo exhibit, “The Faces of Chronic Fatigue

Syndrome,” will be displayed from March 9-12 in the Arline and Henry

Schwartzman Courtyard (atrium) at Robert Wood Johnson University

Hospital, in New Brunswick, New Jersey. It can be viewed by conference

participants on March 10. The compelling exhibit features portraits and

stories of patients (including three past and present NJCFSA members),

family members and health care professionals. It’s part of the national

CFS Public Awareness Campaign sponsored by the CDC and the CFIDS

Association of America.

Mark your calendars and save the date!

In March the New Jersey Chronic Fatigue Syndrome Association

and the CFIDS Association of America will join forces

to bring you a special event that combines the

spring conference of the NJCFSA with the

CFIDS Association’s popular kNOw MORE CFS seminar series.

Additional information is available on the NJCFSA website at www.njcfsa.org

and on the CFIDS Association of America’s website at www.cfids.org.

Early registration is recommended as seating is limited.

Don’t miss this special event!

 

 

 

Clinical Studies


The Center for Community Research at DePaul University is studying ME/CFS in
children and adolescents.

In order to determine a diagnosis of Pediatric ME/CFS, the child must report
fatigue as well as classic ME/CFS symptoms in each of the following
categories for a duration of at least 3 months in addition to a frequency
and severity rating:

Classic ME/CFS Symptom Category

a. fatigue
b. Post-exertional malaise
c. Sleep
d. Pain - At least one symptom from:
Myofascial pain, Joint pain, Abdominal, or Head pain
e. Neurocognition - At least two symptoms
f. Other Category - At least one symptom from two of the following three
categories:

    Autonomic manifestations:

    Neuroendocrine manifestations:

    Immune manifestations:

We are looking for children and adolescents ages 5-17 and their parents/guardians to complete the DePaul Pediatric Health Questionnaire
(DPHQ).

* The DPHQ is a short questionnaire and will take about 30 minutes to complete

* Participation and answers will be kept confidential

* You can either mail the questionnaire back to us or we can pick it up.  Your time and voluntary assistance are needed and appreciated.

If you and your child are interesting in volunteering, please contact:

Michelle Choi, MS, RN
Email:
mchoi7@depaul.edu
Telephone: (773) 325-4976
Copyright IACFS, 2004 All Rights Reserved | Powered by Odin Organic
Framework v3.5

The New Jersey Chronic Fatigue Syndrome Association and Monmouth MedicalCenter

Hosts

New Medical Findings in Chronic Fatigue Syndrome

Fall Conference

Saturday, November 5, 2005

12-5pm

Sheraton Conference CenterEatontown, New Jersey

Featuring:

Dr. Paul Cheney, renowned authority on CFS, will speak on his latest findings in cardiology and CFS patients.

Dr. Susan Levine, Infectious Disease Specialist, will present new research findings in the Central Nervous System of CFS patients.

Shanon McQuown, Special Education Coach, will talk about the impact of CFS on a child’s education, the topic of her recently published book, Harnessing the Wind.

For more information and registration click on www.NJCFSA.org.

 
 
Dr. Lapp Speaks In July
 
When:  July 27, 2002
Time:  2:00
Place:  Piedmont, Virginia Community College
for more information, call 434-984-3419
or email monajt@msn.com
 
 
CFS Awareness Day           May 12, 2002
 
May 12 is designated CFIDS/CFS Awareness day.  Please do your part to raise awareness about this disease. 
 
For ideas about awareness projects:  http://www.cfids.org
 


The Evolving Face of Chronic Fatigue Syndrome and Fibromyalgia

 

NJCFSA 11th Annual Conference             

April 27,2002   Noon-5:00p.m.

Speakers: Kenneth J. Freidman, PhD, Gudrun Lange, PhD, Charles W. Lapp, MD, Richard N. Podell, MD

For more information:  http://njcfsa.org/CONF.html


 
Advocacy Project 2002:  Forget Me Knots
 
 
 
Add your quipu ribbon to the ribbons of those who suffer with CFS/CFIDS/ME.  These ribbons have one knot per year you have been living with the disease.
Deadline:  April 15, 2002
For more information:  http://chargeinc.org
 

 

 

 

 

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