Meet Peter Hopkins

Peter Amann Hopkins was born on November 5, 2006 at 7:39 PM. He weighed 7 pounds 2 ounces, and he was 20 inches long. He is the apple of Mom and Dad's eyes, and he is our little angel.

In December (at 6 weeks of age), Peter was admitted to Children's Healthcare of Atlanta at Scottish Rite for "Failure to Thrive." During these 6 nights in the hospital, the doctors began the battery of tests that led to a diagnosis on March 16, 2007.

Peter has been diagnosed with a very rare genetic disorder called a Peroxisomal Disorder. This disorder only affects about 20 babies per year in the US, and there are only about 200 people living with this particular disorder today.

This is a disorder for which there is no curative treatment, and no PROVEN treatment. It is described as "fatal," and children typically do not live past their teen years with this. We, of course, with lots of prayers and the Lord on Peter's side, plan for Peter to beat all of the odds and live a very full life.

The great news is that Peter will not be in any pain. He will lead a very happy life, but of course it will just be different than we had expected or ever thought it would be.

We will, of course, all continue to pray for healing. God is bigger than all of this, and He CAN heal our little guy. The Lord has been very faithful in answering many prayers throughout this, and He has taught us quite a bit already.

We will continue to trust in Him to see what the future holds for our little son and our family.

 

 

http://peterhopkins.eachday.com/2007/12/25

http://www.caringbridge.org/visit/peterhopkins