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 Welcome,

Leukodystrophy Family !

 

 All together now!

James, Sarah, Amy, Caroline, Charla, Paul and Lori

 

 The ladies are here too.

Janis, Jamie, Sarah and Caroline

 Dr's Hugo and Ann Moser.

 

  James and Dan.

Too much fun!

Please, add photos, stories, links and interesting things. Thanks!!!  

The Leukodystrophy Family site is a peer support group for patients, family and friends affected by Leukodystrophies.

All members of this site will not be held liable for how this informaton is perceived or utilized.
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  New Messages
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New drug
I had contact with David Schmidt from ReceptoPharm back in March 2007.  I believe they were conducting British trials and nothing in th...
MSN Nicknamekrsmith0410   08-18-08
What age are you?!
I've made it to 60.  Have been affected since 41 yrs old.  The progression of the disease has been slow.  I've been wheeling around for 7 years.  If you have any question...
MSN NicknameLabby103   08-17-08
What age are you?!
Hi, I am 45 and was diagnosed in 2005, only when my seven year old nephew was diagnosed with ald. He died a year later. I believe the disease began to onset in my final year at univer...
MSN NicknameSunburntDeo   08-15-08
New drug
http://www.nutrapharma.com/newsroom/display.php?newsid=131The company states that the drug is on trial for the treatment of AMN. Not sure what that means. Does it prevent progression of the ...
MSN Nicknamebucknertw   08-13-08
 
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MSN Nicknamechatsworthlakegirl 07-30-08
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