A Christmas story, if there ever was one. Read this series of communications and you will get a feel for the extent and depth of what dietary micronutrient supplements are capable of doing and in this and many other gene defects have done. To think that Abby was put in an orphanage due to her gene defects by her birth parents and a couple took her out and gave her glyconutrient food supplements. Her response might put some perspective to the outlandish assertions I just sent to you, that just happen to be factual and are the truth. No, sorry the FDA and organized medicine would only scoff and say there is no evidence-based support that such things can happen.
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Subject: Abigail Sullivan (now 4 yrs old)
Dear Dr. McDaniel and staff,
It has been a while since we have reported on Abby's progress... so much has happened in 2005. Without overstating it in the least, we have experienced what is no doubt a miracle.
As I reported previously, Abby was diagnosed with Mitochondrial disease (ragged red fiber variety) in Dec 2004 after over year of relentless seizures and rapid physical decline... during 2004, she had upwards of 50 seizures a day at times, lost her ability to walk (or crawl for that matter), stopped speaking, and was declining rapidly in all areas. We sincerely believed we were losing her. In October 2004, we were admitted (yet again) to the hospital for a "swallow study" (she was having difficulty chewing and swallowing her food) and a battery of genetic and other tests. Shortly afterward, she underwent a muscle biopsy... in December, the result of that biopsy was her diagnosis. By January, we were discussing with her doctor the possibility of installing a feeding tube.
In late January (after hearing about glyconutrition earlier but being unable to determine what it was and being unsure if it could really help Abby), I spoke with Debora Miklose, whose daughter Emily also has Mitochondrial disease... she confirmed what I had been told.... that Emily's prognosis was at one time as bad as Abby's but that she had experienced a dramatic reversal of her symptoms using glyconutrition. That was all I needed to hear... I had since been made aware of the "Hope" program at Mannarelief and contacted them immediately.
In late January 2005, Abby began a glyconutrition protocol outlined by Mannarelief consisting of (classic) Ambrotose, Phytaloe, Ambrotose AO, Plus, Immunostart, Mannabears, and Glycobears. She also takes a B-complex with Vitamin C (she was on this prior to glyconutrition in addition to Co-enzyme Q-10 and other supplements with no visible results... we no longer give her Q-10).
Within days, we could see a change in Abby's energy levels... we were afraid we were imagining things and were cautious about the idea that we might have a tendency to "see what we wanted to happen". It didn't take long to realize that our greatest hope was being fulfilled. In April, Abby began to walk again... she was also babbling constantly
and began learning to speak again. Within months, she was running, climbing stairs, and regaining lost abilities quickly. Best of all, her seizures inexplicably stopped! There had not been a day since the onset of her seizures in which she hadn't had at least a dozen... we had been on countless medications with no benefit and a myriad of side effects... we have been able to withdraw her anti-seizure medications over the course of several months and she has had no recurrence of seizures.
Abby in now a nearly normal 4 yr old... physically, she appears normal and can do most things that any 4 yr old can do... she is behind her peers in speech, but is gaining ground rapidly (she spent over a year in an orphanage, so this may account for her delays as much as her health problems). Abby is growing like a weed, eating like a horse, and enjoying every minute of life. She has quite a sense of humor and can frequently be found trying to yank Mommy's pants down or pulling the dogs sweater over her head while giggling uncontrollably.
I was initially surprised that we were not besieged with requests for information from other families whose children have mitochondrial disease...
and then I began to hear and see how Doctors reacted to the news of our miracle. Some have discouraged parents from trying glyconutrition, saying "we don't know what it will do to your child"... of course, WE ALL KNOW WHAT THE DISEASE WILL DO TO THESE CHILDREN!!! I've come to understand that not everyone will be willing to accept the idea that something as "simple" as nutrition can have such a powerful effect. The Doctors have us all convinced that we need "real medicine"... not some "feel good thing" like glyconutrition. I myself had to reach a point of desperation where I was willing to try anything to avoid what we were told was inevitable.
I know I'm preaching to the choir here, so I just want to offer one final thought. I understand the liabilities associated with Mannarelief/Mannatech telling people that glyconutrition will cure any specific disease or condition. As a result, it can be very difficult to find information to help guide people suffering with various ailments who might benefit from glyconutrition. Please feel free to give my name and e-mail address to any families who might need our help. We'd love nothing more than for another family to experience what ours has in 2005. Merry Christmas and Happy New Year to you and yours... ></SCRIPT>
God Bless,
Don Sullivan
Reply about Abby
http://www.valdezlink.com/pages/ahappystory.htm
Nutrition Paradigm
And Disclaimer
More Info www.glyconutrientsreference.com/Frames/glyconutrientsreferenceframeset.html
The thought on using glyconutrients, in my opinion, is that it helps the immune system to work properly instead of being autoimmune - 'friendly firing' ... and then the body can stop tumor formation ... & recruit its own stem cells. Glyconutrient trials are coming from research done by Roger J. Williams
