Welcome to the PTC Community!
Please view the About this site page to find out how this site came about. My name is Heather (Manager and Site Creator), and Morgana is our Assistant Site Manager.
You may have found us through a search engine, a link from another site, or a referral from a friend or family member. Whatever the reason, I'm glad you have found us, and I hope you will find the site helpful. My hope is that this site serves as a starting place for you to better inform yourself and others regarding the many aspects of this neurological condition. I hope it will also serve as a source of support from those who understand how you're feeling.
The most important thing I can tell you from experience is - do not let the experiences you read online scare you!!! This condition affects everyone differently, and typically the most difficult cases are the ones seeking the most support (from sites such as this).
If you have any questions, comments, or suggestions at any time, please don't hesitate to contact me (email listed below). Large portions of content from within the site have been placed here with the help of various site members like you! You may find our condition referred to as Intracranial Hypertension(IH) which is the currently preferred term, Pseudotumor Cerebri (PTC), or even Benign Intracranial Hypertension (BIH). All of these terms refer to the same condition.
Effort has been taken to make this site as accessible as possible for those with low vision and visual sensitivities. You can view alternate accessibility options within the Visual Aids.... page.
You can browse the site by clicking the desired category from the bar on your left. Each new member will receive a personal welcome via email from me. All the information you should need to access this site is contained within. By applying for membership to our site, you are agreeing to our Site Rules. Please review before posting to the message boards.
What should I do as a new member?There are a few things you can do to introduce yourself to the others.
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Submit your Member Profile per directions listed above.
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Post a picture of yourself under Pictures -
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Visit the IH Apparel page to help us raise awareness and research money for Intracranial Hypertension!
These are just a few ways to begin meeting others like you and navigating through all the site has to offer. Please contact me or Morgana with any questions or suggestions.
I strongly recommend visiting the website of the non-profit group the Intracranial Hypertension Research Foundation. They have developed a world-wide registry of IH patients that is critical to the future IH research. It is up to us to make this research happen! Within their site you will find a wealth of information regarding IH, information on how to organize your own fundraiser for the IHR Foundation, and find out the very latest in IH research news. Please visit The IHR Foundation today!
If you have questions or concerns at any time, please contact site management at the addresses listed below.
