My 14 yr old daughter has the following symptoms:
- osteopenia (bonescan diag)
- hydromyelia in spine (MRI diag)
- joint pain (at time severe enough to necessitate wheelchair) - remissions and flare-ups
- low blood pressure (75/40)
- erosions in jejunum (video pill, ab ct diag)
- low body temp (97)
- underweight (5', 80 pounds)
- under growth potential (genetic potential 5'5)
- underperforming academically (at 5 had 133 iq, at 11 had 115 iq, currently c-d student in basic classes despite effort
- brain fog, poor short term memory
- Hashimoto's thyroiditis
- cat allergy (all other IgE normal, awaiting IgG results)
- fibromyalgia tender points 2 years ago but not presently
blood tests normal
echocardiogram normal
celiac markers ruled out
lyme disease ruled out by western blot
Is taking many supplements for osteopenia and joint pain along with multivitamin.
any ideas???????????
thanks - any input appreciated
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psyfauve said...
My 14 yr old daughter has the following symptoms:
- osteopenia (bonescan diag)
- hydromyelia in spine (MRI diag)
- joint pain (at time severe enough to necessitate wheelchair) - remissions and flare-ups
- low blood pressure (75/40)
- erosions in jejunum (video pill, ab ct diag)
- low body temp (97)
- underweight (5', 80 pounds)
- under growth potential (genetic potential 5'5)
- underperforming academically (at 5 had 133 iq, at 11 had 115 iq, currently c-d student in basic classes despite effort
- brain fog, poor short term memory
- Hashimoto's thyroiditis
- cat allergy (all other IgE normal, awaiting IgG results)
- fibromyalgia tender points 2 years ago but not presently
blood tests normal
echocardiogram normal
celiac markers ruled out
lyme disease ruled out by western blot
Is taking many supplements for osteopenia and joint pain along with multivitamin.
any ideas???????????
thanks - any input appreciated
I think you could find the same type of patterns with the 'gulf war syndrome' vets and with people with too much exposure to 2-butoxyethanol.
I think it causes autoimmune hypothalamus - my theory
I am checking with a couple dozen people in my town with suspected exposure ... they should all have a subnormal body temp if I am right -
I think that is part of the Central Nervous System autoimmune issue/s
if they have dealt with these symptoms for awhile *
& I think glyconutrients would help them or anyone with autoimmune issues
FM is an autoimmune issue as is the core issue after too much exposure to this chemical - so is CFIDS
HELP * *
Help your doctor ... when did these things seem to start up?
Or was she a premature baby?
In that case could you share more about you and your husband & what work you did or whether one was in the military or a war?
