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Christian Mother's Support Group - Christian Mother's Support Group
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PHACES Support Group - A site for families living with PHACES Association (AKA PHACES Syndrome)
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PHACE Syndrome Community - PHACE SYNDROME SUPPORT
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SWS Support Group on MSN - SWS Support Group
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Our back up site group 2 - VB Support Group overflow site for pictures and documents
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Testing Birthmarks -
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SWS Community - Sturge Weber Syndrome Community
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Glen's Gang - Glen Ethington is an 11-year-old with Sturge-Weber syndrome and a facial port wine stain. A VBF Kids Who Care member, he invites VBF/SWSC Kids to join "Glen's Gang", a pen pal group and monthly newsletter for kids with birthmarks and their siblings. Kids can share their experiences, hobbies, and correspond with Glen and other pen pals. Glen's Gang can also be found on the VBF website under the "Community" link. Parents and/or Guardians, please be sure to complete the "Parental Permission Form" in order for your child to join. 
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About Face International -
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French Vascular Birthmark Website - Vascular Birthmark Information in French
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The Vascular Birthmark Foundation - The VBF provides support and informational resources for individuals dealing with all types of vascular birthmarks
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Vascular Birthmark Foundation European Chapter - VBF Europe Chapter
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birthmarks.com -
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http://www.birthmarks.us - Please visit this site to learn various forms of birthmarks, diagnostic tests and treatment options by Dr. Orhan Konez,Vascular Anomalies Specialist
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VB Support in Europe - VB Support in Europe
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Buddy Booby's Birthmark Book -
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Children's Craniofacial Association -
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How to help children with differences - 'Don't let the way I look affect the way you see me.'
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Children's Miracle Network - The alliance of premier hospitals for children-is a non-profit organization dedicated to helping kids by raising funds for 170 children's hospitals across North America.
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Operation Respect -
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Empower Disabled - Empower Disability Resources: Where the Disabled are Enabled!Here you will learn that you are not alone in your attempt to make sense of Web resources for the disabled. A comprehensive list of organizations, products, education, services, support and freebies for the disabled and those close to them.
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Growing up with a Hemangioma - Adults Story growing up with a hemangioma
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The Foundation for Faces of Children -
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Forward Face -
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Geoff Ritchie's Story" -
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Hank's Story - Hank's personal journey
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Healing wounds - Apligraph
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The Hemangioma Treatment Foundation - by Dr. Marcelo Hochman "We care We cure"
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Hope For Kids - Dr. Reinisch in L.A. Children's Plastic Surgery
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Utility for reading WORD documents Free download - To read word docs. without having Word on your computer...free download. Use this to read our documents.
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FDA approved treatment for cerebral AVMs - References Micro Therapeutics Inc “Onyx AVM” a liquid embolic system. |