 |
PWS
|
(L Cheek )(Above LIP)(L area around Nose)
|
None
|
Aracely & Jeremy Stump
|
Sept.1.05(4wksEarly)
|
Colorado
|
V-Beam Laser ( just Started at 7 Months)
|
 Conchita1967
|
|
|
How My Face Looks
|
None
|
Landabee
|
1966
|
Florida
|
None
|
Landabee1
|
|
|
above right side of lip, right side of face, right ear, right neck, right side of scalp
|
none
|
Stacy
|
Trevor Joseph 06/10/1998
|
Orem, Utah
|
none
|
sdilsley
|
|
|
back of neck
|
none
|
Glenna Meadows
|
Zoe Meadows 09/17/2004
|
Higley, Arizona
|
none
|
zoemeadowsmommy
|
|
|
Back of neck, bottom of hairline
|
None known, but CHD's
|
Shannon
|
Sydnie 5/29/04
|
North Carolina
|
None
|
![]() Jennazmommy
|
|
|
bottom, backs of both legs, bottom of both feet and between toes
|
|
|
Dawson
|
North Carolina
|
Laser
|
ks9604
|
|
|
Center part of forehead from hairline to between the brows
|
none that I know of yet....
|
Nolan
|
1/13/06
|
Upstate NY
|
V-Beam with Dr. Waner
|
NoliesMom
|
|
|
Cheek and upper lip
|
unknown
|
Leslie
|
Emily 3/22/08
|
Irvine, CA
|
PDL with Dr. Nelson
|
EmilysMom0308
|
|
|
Chin, right cheek, top of chest, and entire right side of neck
|
NONE
|
Kennan
|
Jude 11-04-05
|
Salt Lake City, UT
|
Pulse Dye Laser Treatment 2/15/06, 4/26/06, 09/06/06
|
KennanGregory
|
|
|
complete right facial and scalp; right hand
|
Sturge Weber
|
Julie Higgins
|
Benjamin 2/14/2002Ben's PWS/SWS Page Our New Blog
|
Braham, Minnesota
|
Laser tx; embolization
|
JulieH_mn
|
|
|
Entire Body
|
None
|
Robin
|
Montana 6/23/06
|
Leander, TX
|
Laser Treatment
|
Robolynn29
|
|
|
Face
|
none
|
Randi
|
Mason 7/17/05
|
Phoenix, AZ
|
15 Dr Hansen and now Dr. Nelson
|
RandiDewall
|
|
|
face, neck, back, chest, left arm and hand, rear, left leg and foot and some on the right leg
|
Sturge-Weber
|
Brenda
|
Brenda 6/17/1967
|
Tucson, Arizona
|
none
|
ProblemWildchild
|
|
|
face/neck, gums, lip, throat, ear, brain
|
Sturge-Weber Syndrome Community
|
Glenda (grandmother)
|
Glen - May 17
|
KY
|
laser
|
kyswsc
|
|
|
Facial - left cheek
|
None
|
Sarah
|
Gretta 5/20/04 Friends and Family blog
|
NYC, NY
|
V-beam laser with Dr. Geronemus Laser Skin and Surgery Center in NYC
|
![]() grettasmama
|
|
