The Vascular Birthmarks Foundation along with theThe Vascular Birthmark Institute of New York Present the 2008 Vascular Birthmarks Conferenceand the “Mark of Beauty” Gala Lisa and Greg Fortunoff, Mark of Beauty Gala Chairs and Sponsors Edward Strausman 2008 Conference Honoree We are very excited to announce that the 2008 Vascular Birthmarks Conference will be held in New York City on Saturday, November 15th. This year the conference is one full day only, with a fundraiser the evening before the conference. For the first time in VBF history, we are having the “Mark of Beauty” Gala to jointly benefit VBF and the VBI (Vascular Birthmarks Institute) at Beth Israel. Dr. Milton Waner and Dr. Alex Berenstein are the 2008 Co-Directors of the conference and Lisa and Gregory Fortunoff are the Friday evening Gala Chairs and Event Sponsors. The “Mark of Beauty” Gala will take place at the incredibly beautiful Hudson Theatre located at 145 West 44th Street from 7pm until 10 pm on Friday, November 14th. The conference will take place at the Beth Israel Union Square Auditorium, Phillips Ambulatory Care Center, at10 Union Square East between 14th and 15th Street on November 15th. It will start at 8:30am, with day care drop off and conference registration/check-in starting at 7:30am. Read more There are three ways to register: online, by mail, or by phone. To register online, use our links. You can also download the registration form and send a check or money order with your $50 registration fee for each conference and/or clinic as soon as possible to VBF, PO Box 106, Latham, NY 12110. Registrations will be taken over the phone only if you are requesting to have all fees except the $25 non-refundable fee waived. For those who need to cancel, all fees will be returned minus the $25 non-refundable fee if you cancel on or before October 14, 2008. To register by phone, contact Paige Salvador, VBF Executive Director, at 856-234-2126. If you have questions, you can email them to Paige at BASPASTS@cs.com or call her at the number indicated. Thank you.
We are very excited to announce that the 2008 Vascular Birthmarks Conference will be held in New York City on Saturday, November 15th. This year the conference is one full day only, with a fundraiser the evening before the conference. For the first time in VBF history, we are having the “Mark of Beauty” Gala to jointly benefit VBF and the VBI (Vascular Birthmarks Institute) at Beth Israel. Dr. Milton Waner and Dr. Alex Berenstein are the 2008 Co-Directors of the conference and Lisa and Gregory Fortunoff are the Friday evening Gala Chairs and Event Sponsors. The “Mark of Beauty” Gala will take place at the incredibly beautiful Hudson Theatre located at 145 West 44th Street from 7pm until 10 pm on Friday, November 14th. The conference will take place at the Beth Israel Union Square Auditorium, Phillips Ambulatory Care Center, at10 Union Square East between 14th and 15th Street on November 15th. It will start at 8:30am, with day care drop off and conference registration/check-in starting at 7:30am.
Read more
There are three ways to register: online, by mail, or by phone. To register online, use our links. You can also download the registration form and send a check or money order with your $50 registration fee for each conference and/or clinic as soon as possible to VBF, PO Box 106, Latham, NY 12110. Registrations will be taken over the phone only if you are requesting to have all fees except the $25 non-refundable fee waived. For those who need to cancel, all fees will be returned minus the $25 non-refundable fee if you cancel on or before October 14, 2008. To register by phone, contact Paige Salvador, VBF Executive Director, at 856-234-2126. If you have questions, you can email them to Paige at BASPASTS@cs.com or call her at the number indicated. Thank you.
The Stephen Dale ProjectBeauty Comes From Within Raising Awareness about Vascular Birthmarks and Other Facial Differences and Helping to Raise Funds to Support VBF The Dale Family, of Louisiana, attended the VBF conference in Boston in October 2006. Little did they know that this conference would change their lives and would change components of the VBF mission. Read more here Get your pin or pendant here For more information on The Stephen Dale Project Born With A Mark Of GreatnessDarynKagan.com brings you the story of Stephen Dale. He is a 16-year-old dedicated to inspiring other kids with facial differences. He was born with a large port wine birthmark covering the left half of his face. Hear how he embraces it.
Raising Awareness about Vascular Birthmarks and Other Facial Differences and Helping to Raise Funds to Support VBF
The Dale Family, of Louisiana, attended the VBF conference in Boston in October 2006. Little did they know that this conference would change their lives and would change components of the VBF mission.
Read more here
Get your pin or pendant here
For more information on The Stephen Dale Project
Born With A Mark Of GreatnessDarynKagan.com brings you the story of Stephen Dale. He is a 16-year-old dedicated to inspiring other kids with facial differences. He was born with a large port wine birthmark covering the left half of his face. Hear how he embraces it.
2006-12-21 Dr. Hochman announces the launching of a new website for children with vascular birthmarks who do not need or qualify for charitable care but seek treatment by a world renowned surgeon. It is the Hemangioma International Treatment Center site at www.hemangiomatreatment.com.
Dr. Hochman announces the launching of a new website for children with vascular birthmarks who do not need or qualify for charitable care but seek treatment by a world renowned surgeon. It is the Hemangioma International Treatment Center site at www.hemangiomatreatment.com.
The Brooks Family - Another Book Is Born From A Birthmark Alexis Brooks, 3 years-old, was born with a hemangioma located on her right eyelid and brow. She went through several laser surgeries until Dr. Milton Waner extracted the lesion on August 18, 2004. Today, Alexis is doing well. Her father recently created a book called FACES as an outcome of his experience with his daughter’s treatment. The website is located at www.tierfaces.com Greeting Cards to Benefit VBF, read more at www.birthmark.org
Alexis Brooks, 3 years-old, was born with a hemangioma located on her right eyelid and brow. She went through several laser surgeries until Dr. Milton Waner extracted the lesion on August 18, 2004. Today, Alexis is doing well. Her father recently created a book called FACES as an outcome of his experience with his daughter’s treatment. The website is located at www.tierfaces.com
Children's Book "Buddy Booby's Birthmark " Created From Evan's Birthmark Experience A portion of all proceeds go to VBF. Place your order, today!!!They make a great gift. Give one to your doctor to put in his office. An inspirational, imaginative, story created by Evan Ducker, a child with a port-wine stain on his face, and written by his mother, Donna-based on their real life experiences. Buddy Booby’s Birthmark is the first children’s book of its kind, created by a child with a birthmark, for children with birthmarks (and their families)! read more at www.birthmark.org
A portion of all proceeds go to VBF. Place your order, today!!!They make a great gift. Give one to your doctor to put in his office.
An inspirational, imaginative, story created by Evan Ducker, a child with a port-wine stain on his face, and written by his mother, Donna-based on their real life experiences.
Buddy Booby’s Birthmark is the first children’s book of its kind, created by a child with a birthmark, for children with birthmarks (and their families)!
read more at www.birthmark.org
The Beckman Laser Institute and Medical Clinic (BLIMC) in collaboration with the University of California Irvine Medical Center (UCIMC) announce the establishment of the Vascular Birthmarks and Malformations Diagnostic and Treatment Center (VBMDTC). The VBMDTC is comprised of a multidisciplinary team of medical specialists designed to provide accurate diagnosis and current treatment options for patients and their families who are affected by vascular birthmarks or malformations, including port wine stains, hemangiomas, arteriovenous malformations, and lymphatic malformations.The multidisciplinary team headed by J. Stuart Nelson, M.D., Ph.D., Medical Director of the BLIMC, consists of such specialists as anesthesiologists, dermatologists, head and neck surgeons, ophthalmologists, orthopedic surgeons, plastic surgeons and radiologists.Vascular birthmarks or malformations occur at the rate of 1 in every 10 births. However, only 1 in 100 of these lesions will require the opinion of a medical specialist. Since these lesions can appear anywhere on the human body, either internally or externally, to ensure the best possible therapeutic outcome, affected patients require the combined expertise of an experienced, multidisciplinary team of specialists whose primary focus is the management of these complex disorders. The Southwestern United States and Mexico have thousand of new cases each year. Unfortunately, few resources exist for families affected by vascular birthmarks or malformations. There are many patients who have not received an accurate diagnosis and proper treatment.Comprehensive services offered by the VBMDTC include: consultation, diagnosis, second opinion, treatment, on-going assistance to primary-care and specialist physicians, information about vascular birthmarks or malformations, information on support and networking groups, and information about insurance coverage and other matters relating to receiving care.The VBMDTC will hold quarterly outpatient clinics for evaluation of patients in which representatives from each key medical discipline will meet with patients and their families. The first two VBMDTC clinics will be held at BLIMC on Saturday April 1, 2006, and June 3, 2006. The team will form a consensus on diagnosis and treatment, which will be presented to the family. This unique program allows patients to be seen by more than one specialist at the same visit and allows physicians to share their mutual assessments and concerns patients and their families. Thereafter, patients will be directed to the appropriate medical specialists for treatment and follow-up. The VBMDTC welcomes self-directed and physician referrals. The services of the VBMDTC may be accessed by contacting the center's office personnel. If you or a family member of a patient affected by a vascular birthmark or malformation wish to schedule a consultation, please contact the VBMDTC Clinical Coordinator at the BLIMC, Andrea Giancarli, by telephone (949-824-4269), FAX (949-824-2726) or e-mail (afgianca@uci.edu).
KT Foundation Bracelets http://www.ktfoundation.org/ktf_bracelets.htmlJoin in by supporting children with KT by purchasing bracelets and helping us raise awareness of both KT and the KT Foundation. Each bracelet has puzzle pieces and the phrases: "I'm a piece of the KT puzzle" and "ktfoundation.org". Thus far, children of all ages love these colors and the unique two-color design! Make your check payable to the KT Foundation and mail it to: KT FoundationP.O. Box 205Lakeview, NC 28350 Bracelets are $3.00 each with free shipping. Please indicate the number you want to purchase of each color. The colors are: Sky blue/white Royal blue/white Pink/white Warm Red/white Lime/white Fuchsia/white Orange/white
new bracelets for VBF will say: "VBF Kids Who Care - Courage and Confidence". They will be two-color swirl (light-blue/white) and have www.birthmark.org on the inside of the bracelet. The order should be in within 4 weeks. This will kick off the new Kids Who Care program. The silicone bracelets currently available for vascular birthmarks and related syndromes are asfollows: Organization: Vascular Birthmarks Foundation http://birthmark.org Color: Light Blue Engraving: VBF/Courage/Confidence Supporting the cause of: All Vascular Birthmarks Cost: $5 each Available: NOW Contact: Saige Cavayero LuvMeLuvMyBrthmark@yahoo.com (Saige is a teenager with a vascular birthmark) Order Form Link: http://birthmark.org/pdf/braceletform.pdf ************************************** Organization: Sturge-Weber Foundation http://www.sturge-weber.com Color: Burgundy Engraving: Believe Supporting the cause of: Sturge-Weber Syndrome, Klippel-Trenaunay Syndrome, and Port Wine Stain Cost: $20 for a package of 10 bracelets Available: NOW Contact: Carol Buck cbuck@sturge-weber.com Order Form Link: https://secure4.nac.net/sturge-weber/marketplace_order.htm ************************************** Organization: National Organization of Vascular Anomalies http://novanews.org/ Color: Burgundy Engraving: Know More Supporting the cause of: All Vascular Birthmarks Cost: 4.95 each, bulk orders are discounted. Available: To Be Announced Contact:Cathy Orr at ckorr@cox.net for bulk orders & discount information Order Form link: www.personalizedcause.com Our group: The Vascular Birthmark Support Group (on MSN) hosts the fundraiser for the NOVA and VBF. More details and ordering can be found at the following link: www.vascularbirthmarksupport.com If you have any questions about this or any other fundraiser, feel free to post on our discussion board.
new bracelets for VBF will say: "VBF Kids Who Care - Courage and Confidence". They will be two-color swirl (light-blue/white) and have www.birthmark.org on the inside of the bracelet. The order should be in within 4 weeks. This will kick off the new Kids Who Care program.
The silicone bracelets currently available for vascular birthmarks and related syndromes are asfollows: Organization: Vascular Birthmarks Foundation http://birthmark.org Color: Light Blue Engraving: VBF/Courage/Confidence Supporting the cause of: All Vascular Birthmarks Cost: $5 each Available: NOW Contact: Saige Cavayero LuvMeLuvMyBrthmark@yahoo.com (Saige is a teenager with a vascular birthmark) Order Form Link: http://birthmark.org/pdf/braceletform.pdf ************************************** Organization: Sturge-Weber Foundation http://www.sturge-weber.com Color: Burgundy Engraving: Believe Supporting the cause of: Sturge-Weber Syndrome, Klippel-Trenaunay Syndrome, and Port Wine Stain Cost: $20 for a package of 10 bracelets Available: NOW Contact: Carol Buck cbuck@sturge-weber.com Order Form Link: https://secure4.nac.net/sturge-weber/marketplace_order.htm ************************************** Organization: National Organization of Vascular Anomalies http://novanews.org/ Color: Burgundy Engraving: Know More Supporting the cause of: All Vascular Birthmarks Cost: 4.95 each, bulk orders are discounted. Available: To Be Announced Contact:Cathy Orr at ckorr@cox.net for bulk orders & discount information Order Form link: www.personalizedcause.com
Our group: The Vascular Birthmark Support Group (on MSN) hosts the fundraiser for the NOVA and VBF. More details and ordering can be found at the following link: www.vascularbirthmarksupport.com If you have any questions about this or any other fundraiser, feel free to post on our discussion board.
Perfect As You Are Your birth marked heart and soul With love for you Perfect as you are Whether the mark That sets you apart Fades or grows Or is erased by a skilled and gentle hand Know that the mark That sets you apart Tells a story Of tears Of patience Of courage Of strength Of beauty Of love for you Perfect as you are Christine Montefiore October 21, 2004
Perfect As You Are
Your birth marked
heart and soul
With love for you
Perfect as you are
Whether the mark
That sets you apart
Fades or grows
Or is erased by a skilled and gentle hand
Know that the mark
Tells a story
Of tears
Of patience
Of courage
Of strength
Of beauty
Of love for you
Christine Montefiore
October 21, 2004
A Mother’s Lament Beautiful as the day they were bornA beacon of light, A vision of MornTeaching us Faith, Hope, and LoveMarked with a smooch from up aboveAn innocent birthmark… so easy to say,Our family lives with this day by day.Efforts to heal are not in vein,A Healthy baby is our goal to obtain.Angel Kisses and Stork Bites, spots and bumps galoreI blindly pledge my love to this child that I adoreStares and teasing from passers byCan be cruel and rude, you can’t denyTruth and knowledge, spreading the wordOur voices united, shouting to be heard“Show compassion to little ones!We stand for our daughters and our sons” Jennifer (Lizzysbuggymom
